[doydie]

My DD asked me what chemo drug is being used for MS. She says she has a friend that is using it. Anyone know?

[sw8689]

I used mitozantrone. Three months, once a month. It was a life saver for me, stopped me from slipping into secondary progressive and I have been stable for five years. Lots of long-lasting side effects however, and as with all of the dmd's, we have to weigh the cost vs the possible outcome. This one worked for me, but didn't do anything for my brother. We are all so different,even if we have the same same genes...

There is another one that has been used for a very long time but I can't remember the name. It is reportedly less effective however.

[Judy2]

Originally Posted by sw8689

I used mitozantrone. Three months, once a month. It was a life saver for me, stopped me from slipping into secondary progressive and I have been stable for five years. Lots of long-lasting side effects however, and as with all of the dmd's, we have to weigh the cost vs the possible outcome. This one worked for me, but didn't do anything for my brother. We are all so different,even if we have the same same genes...

There is another one that has been used for a very long time but I can't remember the name. It is reportedly less effective however.

Hi SW!

Is this the drug known as Novantrone? If so, I tried 2-1/2 infusions of it about five years ago. Sadly, I had the same horrible side effects as I did with the interferons, so didn't complete the course. It was pretty creepy when that bright blue liquid started going into the veins!!

I'm glad it worked for you -- yes, my MS has been spms for three years now where I'm in a powerchair all the time. But......I do still live alone!! Hope you and your brother continue to do well.

[sw8689]

Originally Posted by Judy

Hi SW!

Is this the drug known as Novantrone? If so, I tried 2-1/2 infusions of it about five years ago. Sadly, I had the same horrible side effects as I did with the interferons, so didn't complete the course. It was pretty creepy when that bright blue liquid started going into the veins!!

I'm glad it worked for you -- yes, my MS has been spms for three years now where I'm in a powerchair all the time. But......I do still live alone!! Hope you and your brother continue to do well.

Hi Judy, sorry your spms and it didn't work for you. Yes it is Novantrone. I wrote a guide on it for our clinic, and one of things very apparent in the research is that it is most successful if used early on in the douse of the disease, and if the protocol is the once a month/3 month then follow up treatment type. My brother I think was too far along, but strange enough it didn't make him sick...