I am so tired that I want to cry. Screaming would take too much energy. I am also a bit dizzy (fell into a wall at school today), experiencing occasional blurriness in one eye, spasticity is worse, and my knees hurt like ______ (fill in the blank). I am also feeling very sorry for myself. Yesterday was the two year anniversary of my dx. I spent most of the day in bed.

I am starting pt on Friday so I hope that will help with spasticity issue. I experienced nausea with the voltaren gel so I stopped taking it. I may try it again tomorrow to see if that was the cause.

Okay -- I am almost done whining. I am also really, really tired of college students. Okay, does anyone else need a turn?

hugss Barb, great big hugssssss

I am sorry you feeling as you are, this spasticity is new to me, at least the last all day stuff is new to me. Used to be just a early morning thing, hugsssss for the pain.

Just lots of hugs, and I know the feeling of tears coming. This stuff can just bring ya down. But let the tears flow then get back to that smile!! hugssss,sarah

We all need our turn at whining! It's well deserved. I'm sorry you are having such a hard time of it. At least you can get it off your chest here and know we all DO UNDERSTAND! Take care!

sorry you're feeling so bad barb.
i hope the PT helps.
sometimes those therapists can also tweak the docs to help too if you need anything else.

I'm so sorry that you're having such a tough time Barb.

I have no magic answers, but I do hope you start to feel a bit better soon. Everyone deserves a break sometime, and I'm guessing that you're a bit over due.

Sending you some gentle hugs and letting you know you're not alone.

Thanks Guys! You do understand. I told a good friend that I fell against the wall at school today while walking because I was dizzy, and she said -- I wonder what caused that. Another friend on Saturday( whose husband has ms -- he is never tired for more than 15 minutes and has few symptoms) was telling me how good and well rested I looked. They both make me want to scream ; they just do not get it.

Barb. I hope it gets better for you soon.

Hi Barb,
We all understand completely, so whine away. Sometimes just writing your feelings on paper or the monitor, in this case, helps let it all out. I usually punch a pillow. I get angry when people don't "get it". Even PWMS, if they don't have the same symptom can't understand how troublesome it is.

People think if you're tired, just rest for a minute or two, or sit down and it will rejuvenate us. If you're dizzy close your eyes and relax. NOT! No way will it help and they don't get it. When you're bone tired or dizzy you can stagger or fall. It takes more than a few minutes to re-coup.

When I get fatigued, I must lay down, NOW. But hey, they think we look so good we must be just a little worn out. They have to walk in our shoes for a whole day and maybe they will get it, or not.

I hope you feel better. Years ago I had dizziness and it went away. I hope yours does too.

Barb This carp does bite the big one. It really irritates me, too, when others act like our sx are just ordinary and we're overreacting. I wish they could just spend 5 minutes feeling like we do.

I hope today is better for you and you can find some relief.

aww...sorry you are having such a poopy time. I must admit
I had to read your post twice as I thought it read...I fell into a well
I was relieved to find it was just a wall.

Take care and big hugs to you!!!