Went to MS Clinic today because I'm probably switching over to there from my regular neuro because I think my neuro is retiring (I think he's retiring, his doctor diploma is dated from 1948)

So, I talked with the NP, and after that, the neuro came in. (looked this lady up, she's only been practicing since last year...she's a newbie)

While talking, I decided to ask if she's heard of it...she has, and then she got all snippy with me and said she wont Rx it. Something about it only being anecdotal....arrrrrrrrrrrrrrrrrrggggggggggggggghhh hhhhhhh!!!!!!!!!!!

So what if it's anecdotal...I've heard from enough people on here that I think it might actually work. I asked if she might ever consider Rx-ing it... Nope...not unless someone does a totally wonderful study of it to prove that it works. (craptastic...I'll never get it now)

I thought my town was fairly big that I might be able to find a doctor that might actually give me a Rx for it....nope...I feel like I'm living in a hick town, and you'd think I was asking for a prescription of marijuana or something that's felony-drug-possession the way they get all grumbly about me asking about LDN.

I'd love to find a doctor who would at least be willing to let me try LDN for a few months or something.

I'd also like to find a doctor who speaks English fluently. It's really kind of difficult sometimes trying to understand some heavy accents. Nothing against the doctors with accents and their countries of origin, it's just hard for me to follow them sometimes.

In other news from my appointment....

They drew blood from me to check some stuff. One was for (I think) liver function...not sure why they did that...

The other two blood draws they did were for a Lyme IgA and IgG, (think it's for the IgA and IgG) and a Western Blot for Lyme.

Seems they're still a bit suspicious since I had several tests for Lyme a couple of years ago that came up positive for some of the Lyme bacterias, just not enough of the Lyme bacterias for me to have a positive test for Lyme. At least the NP didnt freak out when I asked for the Western Blot (I asked for it two years ago when I was at that clinic for my 2nd opinion...and they did it for me then too) She also didnt freak when I kind of showed some of my knowledge about Lyme. The NP actually commented that I seemed to have a good understanding of MS and how exacerbations can be triggered.

Oh...and they're going to make me get an MRI (brain and spine) Argh! MRI nazi's! I tried to get out of it...mostly because I'm claustrophobic, but also because I cant afford an MRI. Silly me, I mentioned that there's a new MRI machine here in town that's more open than an open MRI. They actually had not heard of this machine before, but they said they'd be glad to shove me in that machine, and oh, by the way, the MSAA does grants that can pay for the entire MRI and they'll try to get me one of those. (crap...should have kept my mouth shut)

I really hate MRI's, and even tho this new MRI is one of the newest and most open MRI that I've heard of, I still dont want to get shoved into one. I also dont think I need a new MRI, since I've only had (according to them) one true exacerbation and one "maybe" exacerbation (both one after another) last year. I think that's mostly my claustrophobia talking.

My probably-soon-to-be-former neuro is of the opinion that you dont need MRI's every couple of years unless you've got something new and obviously horrible going on. I like the way he thinks...even if he wont give me any LDN.