NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)

- - So COnfused (https://www.neurotalk.org/multiple-sclerosis/83338-confused.html)

welcome to NT.

i have to agree. this "dr" sounds like a lunatic. i hate when drs write off your sx's. and, if a degreed MD radiologist says you have lesions i'd believe him.
you really need another opinion. and don't worry about how long you have to wait to see a real dr.

Quote:

Originally Posted by craterhead (Post 491567)

:confused: I had 2 mri's within 11 mos. the second showed 7 lesions mostly in the white matter. I used this forum actually to find information for placement. Thank you for that. Finally got to the "specialist". He claimed what the radologist saw what just an interpertation. As if we were discussing art. And what he saw was not there. I was corrected there are no such things as "lesions" they are merely shadows. People with ms I am told don't get headaches. Don't have tremors. Or petite mal seizures. I initially was told I have ms by another dr and then this Dr says you may, you may not. Even if you did I wouldn't treat it. What? So he ordered an mri of the spine. He remarked of my physical strength. Well I KEEP strong. This is frustrating to say the least. It took weeks to get an appt with this guy. He asked no medical history. Perhaps I should get a second opinion. I don't know. Does anyone have anything they can share as far as their own symptoms or side affects? Thanks so much. Stephanie

I'd like to tell that doc - And if you were on fire, I would not try to extinguish you.

He may or may not have a brain. Run, Stephanie, run.

If you watch Mystery DX, people all the time say "If you have to see 100 drs, that's what you do."

I sometimes feel it may take me 100 drs, but that does not make me prefer to settle for one that is not helping. There's no point in paying someone who is not doing everything he can to help me. That is a waste of time and money.

Quote:

Originally Posted by craterhead (Post 491567)

Steph -

First off, welcome to the board!

I was told I have MS in early 1988. Symptoms at time, among other things - severe back of neck pain. This finally went away in 2004.

First grand mal seizure - 2/93. Last seizure - 9/94.

First MRI - 3 lesions, 4/89 (there was a long waiting list back then for an MRI).

Last MRI - ~ 30 lesions in 2003. I don't need to know any more at this point.

Your doctor does not appear to understand MRI lesion distribution or presentation in MS patients. I would suggest a second opinion.

Side note - lesions do come and go. Your body is capable of healing itself. I got 15 years of MRI films... In my case - outright symptoms seem to come and go.

Lesion count (gray and not active or white (with contrast) active) really isn't an indication of where you might be with the disease. Location is probably a bigger player. As I understand it, 85% of people with MS aren't outwardly affected by the disease. I'm in this group, even after 21 years.

MS treatments - beer. bar-b-q, and coffee seem to work. I don't know about them crab's... Never been on one of them (ok - copaxone for a couple of months in 2003).

Tom

I have headaces, tremors, muscles spasms, weakness.....and the list goes on. Welcome to the board and find another doc!

Dump u nero - enough said - u got a very mad one