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04-05-2009, 10:01 AM | #1 | ||
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I had 2 mri's within 11 mos. the second showed 7 lesions mostly in the white matter. I used this forum actually to find information for placement. Thank you for that. Finally got to the "specialist". He claimed what the radologist saw what just an interpertation. As if we were discussing art. And what he saw was not there. I was corrected there are no such things as "lesions" they are merely shadows. People with ms I am told don't get headaches. Don't have tremors. Or petite mal seizures. I initially was told I have ms by another dr and then this Dr says you may, you may not. Even if you did I wouldn't treat it. What? So he ordered an mri of the spine. He remarked of my physical strength. Well I KEEP strong. This is frustrating to say the least. It took weeks to get an appt with this guy. He asked no medical history. Perhaps I should get a second opinion. I don't know. Does anyone have anything they can share as far as their own symptoms or side affects? Thanks so much. Stephanie
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04-05-2009, 10:10 AM | #2 | |||
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Wise Elder
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Hi, Craterhead ! Welcome to NeuroTalk! I LOVE your moniker!
Dump that neuro and find a real one! MS symptoms are widely varied and all or none of yours could easily be MS. I don't like this guy's attitude, his need to play symantics with you is reason enough to move on to a second opinion.
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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"Thanks for this!" says: | craterhead (04-05-2009), NurseNancy (04-06-2009) |
04-05-2009, 10:46 AM | #3 | |||
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Grand Magnate
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He was a specialist??? I've never been to a new neuro or specialist where we didn't review some med history. There are definitely leisons associated with MS, The dawson fingers effect is well documented. And pointed out to me by both my neuro and specialist. Plus all the studies that say the sooner you are on a treatment, the chance of slowing progression increases?? Find another for sure.
My first "can't be ignored" symptom was tremors. So yep, MS'ers can get those. My mom (who also had MS) had a few siezures associated with it. My neuro is also constantly surprised by my strength in the exams, but I have a lot of other stuff I flunk. I just chalk it up to everyone is different.
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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04-05-2009, 11:53 AM | #4 | |||
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Elder
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Hi craterhead. welcome.
I have MS, and i have headaches! I hope you get better answers soon.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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04-05-2009, 12:02 PM | #5 | |||
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In Remembrance
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Welcome Craterhead.. I'm glad you found us.
Yep, get yourself a better Neuro...This one sounds like he's the one who's confused...sheesh. I've not had tremors or seisures, but my MS is not your MS. And.....any kind of nerve pain and that includes headaches, can happen with MS.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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04-05-2009, 01:06 PM | #6 | |||
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Member
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Stephanie,
I was just dx'd in January 09 and I am on my 3rd Neurologist since July of 2006. The first two were just not a fit for me, as I felt like I was just a "folder" in their files, not a human being with a heartbeat. I suggest that you post a thread asking for recommendations of a good Neuro in your area...that is what I did and that is how I found my 3rd Dr. (thanks again Polar Bear! ) so keep looking until you find one that will explain things to you! As far as being told that people with MS don't have tremors.....well that is not true! I have numbness, I have tremors and I also have headaches much more often than a couple of years ago. MS is not a "cookie cutter" disease, everyone is unique. I know that you will find the "right one" too! Just don't give up and take the first interpretations as fact if you aren't comfortable with the Dr. You deserve to have your questions answered and your concerns addressed. Good luck to you!
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Amy DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE . July 2006- First significant SXs, suspect it started back in mid 1990's 1/21/09 - Positive MS Dx 2/17/09 - 2nd Positive MS Dx 4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for . 10/8/09-optic neuritis flair, Cog Fog, chronic headaches 5/4/09 - 12/15/09 Copaxone 1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion 3/3/16 - signed the documents to start the Lemtrada journey 4/25/16. Lemtrada begins. |
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04-05-2009, 04:12 PM | #7 | |||
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Magnate
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My MS is driven by headaches... only they're not 'true' headaches.
My first symptoms of MS striking were likely when I had type 1 Trigeminal Neuralgia attacks several years ago.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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04-05-2009, 04:33 PM | #8 | |||
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Grand Magnate
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What Cindy said..Dump the neuro and find a real one..In fact, show him some of the comments you've gotten on this thread. He'll either decide to learn more about the disease he thinks he's talking about, or be a dead head forever (not the good kind )...
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04-05-2009, 05:22 PM | #9 | |||
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Grand Magnate
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At the 5th MS specialist neuro I was very happy. But then he moved. Number 6 at beginning of May, wish me luck. On my MRIs, even I could see the lesions, so no question about it.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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04-06-2009, 11:08 PM | #10 | |||
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Grand Magnate
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Always wishing you the best of luck, my dear Kicker!
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