advertisement
Reply
 
Thread Tools Display Modes
Old 04-05-2009, 10:01 AM #1
craterhead craterhead is offline
New Member
 
Join Date: Apr 2009
Location: Central NJ
Posts: 1
15 yr Member
craterhead craterhead is offline
New Member
 
Join Date: Apr 2009
Location: Central NJ
Posts: 1
15 yr Member
Shocked So COnfused

I had 2 mri's within 11 mos. the second showed 7 lesions mostly in the white matter. I used this forum actually to find information for placement. Thank you for that. Finally got to the "specialist". He claimed what the radologist saw what just an interpertation. As if we were discussing art. And what he saw was not there. I was corrected there are no such things as "lesions" they are merely shadows. People with ms I am told don't get headaches. Don't have tremors. Or petite mal seizures. I initially was told I have ms by another dr and then this Dr says you may, you may not. Even if you did I wouldn't treat it. What? So he ordered an mri of the spine. He remarked of my physical strength. Well I KEEP strong. This is frustrating to say the least. It took weeks to get an appt with this guy. He asked no medical history. Perhaps I should get a second opinion. I don't know. Does anyone have anything they can share as far as their own symptoms or side affects? Thanks so much. Stephanie
craterhead is offline   Reply With QuoteReply With Quote

advertisement
Old 04-05-2009, 10:10 AM #2
AfterMyNap's Avatar
AfterMyNap AfterMyNap is offline
Wise Elder
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
AfterMyNap AfterMyNap is offline
Wise Elder
AfterMyNap's Avatar
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
Default

Hi, Craterhead ! Welcome to NeuroTalk! I LOVE your moniker!

Dump that neuro and find a real one! MS symptoms are widely varied and all or none of yours could easily be MS. I don't like this guy's attitude, his need to play symantics with you is reason enough to move on to a second opinion.
__________________
—Cindy

For every day I choose to play,
I set aside a day to pay.
—AMN


"Sometimes plastic wrap just won't cling, no matter how much money you put in the meter."

—From the Book of True Wizdom
AfterMyNap is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
craterhead (04-05-2009), NurseNancy (04-06-2009)
Old 04-05-2009, 10:46 AM #3
FinLady's Avatar
FinLady FinLady is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Raised NY, Live OH
Posts: 3,060
15 yr Member
FinLady FinLady is offline
Grand Magnate
FinLady's Avatar
 
Join Date: Jan 2008
Location: Raised NY, Live OH
Posts: 3,060
15 yr Member
Default

He was a specialist??? I've never been to a new neuro or specialist where we didn't review some med history. There are definitely leisons associated with MS, The dawson fingers effect is well documented. And pointed out to me by both my neuro and specialist. Plus all the studies that say the sooner you are on a treatment, the chance of slowing progression increases?? Find another for sure.

My first "can't be ignored" symptom was tremors. So yep, MS'ers can get those. My mom (who also had MS) had a few siezures associated with it.

My neuro is also constantly surprised by my strength in the exams, but I have a lot of other stuff I flunk. I just chalk it up to everyone is different.
__________________
Strength comes in all types of packages, even those you don't expect

Dx'd MS 2007, Fibro 2009
FinLady is offline   Reply With QuoteReply With Quote
Old 04-05-2009, 11:53 AM #4
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

Hi craterhead. welcome.

I have MS, and i have headaches!

I hope you get better answers soon.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
Old 04-05-2009, 12:02 PM #5
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Welcome Craterhead.. I'm glad you found us.

Yep, get yourself a better Neuro...This one sounds like he's the one who's confused...sheesh.

I've not had tremors or seisures, but my MS is not your MS. And.....any kind of nerve pain and that includes headaches, can happen with MS.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
Old 04-05-2009, 01:06 PM #6
DizzyLizzy's Avatar
DizzyLizzy DizzyLizzy is offline
Member
 
Join Date: Dec 2008
Location: Minnesota
Posts: 222
15 yr Member
DizzyLizzy DizzyLizzy is offline
Member
DizzyLizzy's Avatar
 
Join Date: Dec 2008
Location: Minnesota
Posts: 222
15 yr Member
Default

Stephanie,

I was just dx'd in January 09 and I am on my 3rd Neurologist since July of 2006. The first two were just not a fit for me, as I felt like I was just a "folder" in their files, not a human being with a heartbeat. I suggest that you post a thread asking for recommendations of a good Neuro in your area...that is what I did and that is how I found my 3rd Dr. (thanks again Polar Bear! ) so keep looking until you find one that will explain things to you!

As far as being told that people with MS don't have tremors.....well that is not true! I have numbness, I have tremors and I also have headaches much more often than a couple of years ago. MS is not a "cookie cutter" disease, everyone is unique.

I know that you will find the "right one" too! Just don't give up and take the first interpretations as fact if you aren't comfortable with the Dr. You deserve to have your questions answered and your concerns addressed. Good luck to you!
__________________


Amy



DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE




.

July 2006- First significant SXs, suspect it started back in mid 1990's
1/21/09 - Positive MS Dx
2/17/09 - 2nd Positive MS Dx
4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for
.

10/8/09-optic neuritis flair, Cog Fog, chronic headaches
5/4/09 - 12/15/09 Copaxone
1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion
3/3/16 - signed the documents to start the Lemtrada journey
4/25/16. Lemtrada begins.
DizzyLizzy is offline   Reply With QuoteReply With Quote
Old 04-05-2009, 04:12 PM #7
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

My MS is driven by headaches... only they're not 'true' headaches.

My first symptoms of MS striking were likely when I had type 1 Trigeminal Neuralgia attacks several years ago.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
Old 04-05-2009, 04:33 PM #8
PolarExpress's Avatar
PolarExpress PolarExpress is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
15 yr Member
PolarExpress PolarExpress is offline
Grand Magnate
PolarExpress's Avatar
 
Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
15 yr Member
Default

What Cindy said..Dump the neuro and find a real one..In fact, show him some of the comments you've gotten on this thread. He'll either decide to learn more about the disease he thinks he's talking about, or be a dead head forever (not the good kind )...
__________________

.
PolarExpress is offline   Reply With QuoteReply With Quote
Old 04-05-2009, 05:22 PM #9
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default

At the 5th MS specialist neuro I was very happy. But then he moved. Number 6 at beginning of May, wish me luck. On my MRIs, even I could see the lesions, so no question about it.
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
Old 04-06-2009, 11:08 PM #10
PolarExpress's Avatar
PolarExpress PolarExpress is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
15 yr Member
PolarExpress PolarExpress is offline
Grand Magnate
PolarExpress's Avatar
 
Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
15 yr Member
Default

Quote:
Originally Posted by kicker View Post
At the 5th MS specialist neuro I was very happy. But then he moved. Number 6 at beginning of May, wish me luck. On my MRIs, even I could see the lesions, so no question about it.
Always wishing you the best of luck, my dear Kicker!
__________________

.
PolarExpress is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Confused Kat 60 Multiple Sclerosis 7 03-13-2009 07:01 PM
Confused.... Abbie Bipolar Disorder 4 05-28-2008 10:28 PM
new to this and so confused! tmk1956 New Member Introductions 3 09-27-2007 06:41 PM
Confused!!! anna abraham Tourette Syndrome 1 09-20-2007 06:50 AM
Hi I am new and confused where to go. riolady New Member Introductions 3 09-15-2007 04:34 AM


All times are GMT -5. The time now is 06:15 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.