FAQ/Help |
Calendar |
Search |
Today's Posts |
|
04-13-2009, 01:03 AM | #1 | |||
|
||||
Member
|
I realise that personal choice, doctor influence, ease of use etc account for a lot but I can't seem to find ENOUGH reasons to start on Betaferon, rather than Copaxone for example.
I have to start somthing ( i can't not try). I know that nothing is set in stone. I know that I can switch if it doesn't suit me. But statistically, fewer people use Betaferon. Why is this? I'm scared of missing something and choosing wrong. |
|||
Reply With Quote |
04-13-2009, 01:26 AM | #2 | ||
|
|||
Junior Member
|
You will release that marketing has a lot to do with all this ..
There's no difference really statistic-wise in using either of the four main medications, Tysabri is the only one which statisically gives better results. One reason may be that Rebif/ Betaseron are similar schedules, except Rebif is 3 x weekly VS every 2nd day - they are generally peoples first choice, Copaxone is for those who don't tolerate interferon or don't wish to take it, and Avonex is for people who like the once-weekly idea however the shot is IM (Intramuscular) rather than SC (Subcutaneous) - ie; in the muscle, or just under the fat - SC shots are much less painful IMO. |
||
Reply With Quote |
04-13-2009, 03:10 AM | #3 | |||
|
||||
Senior Member
|
after reading materials on all four, it seemed that there was a better chance of the Beta working for me. When I was diagnosed the dr said my ms was very active and most likely progressive. The other 3 meds didn't mention helping in the more progressive stage. So I'm just guessing, but maybe the 3 others are more effective in the very early stages?? I could be completely wrong. More folks on here that know much more than I do. But this is just my experience in choosing. The dr. didn't choose for me, but was in agreement with me.
Hope this helps.
__________________
~ Friend2U . . HANG IN THERE! If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici MS/dx2006 BETASERON (Quit May 2011) COPAXONE (Began June 2011) |
|||
Reply With Quote |
"Thanks for this!" says: | pud's friend (04-13-2009) |
04-13-2009, 06:30 AM | #4 | |||
|
||||
In Remembrance
|
You can be inundated with 65% versus 59% versus other statistics. Beta 1b, the Beta 1a's (rebif and avonex), and COP II (copaxone) all seem to be about the same effectiveness. Beta 1b got approved first (betaseron), and there was general surprise in the MS community at the time as it wasn't really the most promising drug during the trials.
Choose what's most comfortable for you. A recent study - 62% of people with MS visiting neurologists and 92% visiting general practitioners or internists were not taking these drugs. This was a NAMCS survey. I don't know - they didn't ask me. Maybe they asked my doctor. I'm in the 92% category. I've had MS for over 21 years. I'm still fully ambulatory. I drew something like 27,000 in the lottery when beta first got approved and was told there would be a 15 month wait. That's when I decided no shots for me. One promising researcher in the late 80's/early 90's was Dr. Ted Yednock's work on monoclonal antibodies. His initials - T.Y. Think TYsabri. Tom |
|||
Reply With Quote |
04-13-2009, 07:58 AM | #5 | |||
|
||||
Grand Magnate
|
I pretty much just threw the dart at the board so to speak and Rebif won. I knew I was PP (Initially DXed RR to give me a shot at DMDs), after 2 years Dr. and I agreed I might as well stop, as nothing out there now helps PPMS. I don't miss it.
__________________
Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
|||
Reply With Quote |
04-13-2009, 08:01 AM | #6 | |||
|
||||
Elder
|
When I started I chose Betaseron. It didnt like me. I was forced to switch.
Many dont chose it because of the flu side effects, and the chance of depression. We spend our days struggling to get from point A to point B and anything that makes that harder tends to get put back to the lower portion of our choices. Copaxone boasts fewer side effects, no depression, and no liver damage to worry about. Many jump on the band wagon simply based on that.
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
|||
Reply With Quote |
"Thanks for this!" says: | pud's friend (04-14-2009) |
04-27-2009, 11:05 AM | #7 | |||
|
||||
Junior Member
|
What made the decision for me was that Avonex looked better on paper than the other choices. Plus I only had to stab myself once a week. Another huge decision maker was Biogen Idec has a very good patient assistance program. My insurance does not cover these medications and they are very expensive. I am getting Avonex for free, can't beat that.
|
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Betaseron Co-Pay Reimbursement | Multiple Sclerosis | |||
Starting Betaseron | Multiple Sclerosis | |||
Betaseron -- new packaging | Multiple Sclerosis | |||
How I chose my surgeon | Thoracic Outlet Syndrome | |||
Betaseron and me | Multiple Sclerosis |