So it looks like the Ty is what's making me cold. I just took 2 Advil's and will see how that works for chills. I think its helping already. Iv'e been tired during the day lacking motavation + little more back pain then usual. I hope I get use to Ty like Rebif after a while. What I loved about Copaxone - zero sides and worked great for 2 1/2 yrs - then poof. I hoestly feel warmer now from the Advil. We'll see. Generic brand too. Ibu is Ibu. 500 count for $15 :)

Edlife, my infusion center doesn't provide blankets. I bring my own nice warm blanket each time. I was still so cold for my last infusion I think I'll bring 2 blankets for my next one. I have found that I'm almost always cold now. So I wear lots of sweatshirts and layers of clothing. Tylenol usually helps me with the achy feeling I get after the infusion but I've never noticed an difference with feeling cold :( My neuro prescribed Provigil for the fatigue. I've found that 1/4 of a tablet will keep me alert for approx 4 hours. I've never used the full dose which is 100 mg twice a day. I use as much as I need on any given day. I've never needed more that 1/2 a tablet. Of course, I do enjoy a nap in the afternoon...LOL

Good luck, Edlife!!!!!!!!!!

Third Tysabri Infusion
 

pml info on 3yrs of infusions
 

On the msworld site a poster named smallie wrote on his home page that a neuro told him (I think neuro is in Israel) that there are 3,000 people on Ty over 3 yrs with 1 case of pml. I do not know how many infusions as 13 possible infusions yearly would be 39. I had 38 in 3 yrs; will have #41 end of Dec.
Linda

Maryann thats great news! And Shyna thanks!
Why am I so punctuated? Because side effects are about gone!
Shampood my patio carpet today (which isnt easy regardless) and feel ok.
Linda as far as pml with me goes, im screwed without Ty anyway so what the hay right?
If im ever in a hospital bed from Ty, I'll call the people at FDA I spoke with about the hormone Estriol they pulled in 08 when they sided with Wyeth and I'll put some guilt trips on. Lets hope it doesnt happen. Estriol was evaulated for MS but its free compared to Ty so maybe thats why it just ended? Estriol was used for menopause..till Wyeth made it known. Still is outside USA.

Thoughts on info needed for TYsabri patients
 

Link to an MS Blogger who has a direct link to the Senior VP of Drug Safety and Risk Management for Tysabri - good chance to get our needs for info identified

http://www.everydayhealth.com/blog/t...-want-to-know/

Chris

Need Tysabri sooner
 

Hi - new member here.

I've been on Tysabri almost two years and finding it wear off at about three weeks. Anyone else have this problem and what can be done about it?

Karen

Hi Karen, welcome :D
I found Tysabri wearing off 3-4 weeks until about a year ago. I have been on Ty for 40 infusions; I now get my infusion every 33 days-this gives me 2 less a year. I find myself slowing a bit but, nothing I can't handle.

I used to say I was jonesing for my infusion ;)
Linda

Welcome to NeuroTalk Karen!! :welcome_sign:

I'm no longer on Tysabri but this forum has lots of good info and especially nice people too.

What happened a year ago that made it better?