What outstanding news :D
I, too, am so happy for you!!!
I am considering not being tested... as I only want to hear good news;)
Linda

Get the test .... and then cover your ears. More information is always better.

Yeah for RW!!!! This calls for a party. I hope you are out celebrating!! I'm very happy for you. Yeah!! Yeah!! Yeah!! Yeah!! I could keep going.....

RW, I'm so happy for you!!! :)

...but, I haven't been following this Ty thread and I don't know what the JC test is. :o

But if you're excited, then I'm excited for you, friend! Hope you enjoyed your meet and eat with the Wabbit.

RW, I'm so happy for you!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I hope we all test negative...if we have a chance to be tested. My neuro is still waiting for Biogen to co-operate. I'll be calling my case manager at Biogen this afternoon.

huge hugs to all :grouphug:,
Shayna

Shayna--let us know what your case worker says and any other tidbits you find out! :hug:

Hooray RW!! :hug: :Dancing-Chilli::Dancing-Chilli::Dancing-Chilli::Dancing-Chilli:

Same with me. My neuro described it as Biogen dragging their feet. Hopefully in the next few weeks.

2nd call from Biogen rep
 

When the rep asked me if I had any questions :rolleyes: let me think !!
I asked about jcv test coming back positive. She said 80% of adults have been exposed to the virus-it is dormant and 65% of adolescents. It doesn't mean that 80% will get pml-just that they've been exposed to the virus.

Fifty percent of those that contacted pml had received immunosuppressant drugs prior to Ty.

As of 8/4/10 there are 71,400 people who have had Tysabri (I said 1 or more infusions-she just laughed ...??) world wide 40,800 are in the U.S.

Biogen does have 2 financial aid programs but does not help with infusions.

I complained again that we want info like it was presented till 7/24/08. I told her that next month will be 4 years for me and telling me chances of pml increase with time on Ty means nothing - I need and have the right to have real odds so I have the info to make an informed decision. She agreed, took notes and said she will pass on.

Just wanted to share
Linda

Well I am currently getting infusion #23 right now. Just waiting for the saline drip to finish. Today was nice--I got put in a room by myself (instead of the usual row of chairs with others). It was quiet and I could kick back and read and nap. Every time I come for an infusion I realize how much I love Tysabri! #24 is scheduled for November and then after that I am not sure what will happen. The clinic is still waiting on approval for the JC virus test. Big medical school = big bureaucracy. With a negative test I would love to stay on the drug. Anyhow, hope everyone is doing well!! :)