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04-25-2009, 12:15 PM | #8 | |||
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Magnate
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Quote:
I didn't get to comment on YOUR First infusion! Glad to hear it was an uncomplicated day! How did you feel when they started the infusion? Relief? Joy? Terror? How are you feeling now?? I know for me, the whole process of fighting for Tysabri came down to when I signed the paperwork with the doctor. I heard a song on the radio out in the office- David Bowie~ "Grounds Control to Major Tom" I told the doc that the song said it perfectly...commencing countdown, engines ON! A month later I heard the song again and it raised every hair on my body when the nurse turned on the pump and I watched that first drop. It had been 26 months of waiting and fighting. I had tears in my eyes and the nurse was blown away when I told her about what had happened during the previous 26 months. I still think of those moments at the start of every infusion! and yes...boring is VERY GOOD!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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