FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
#8 | |||
|
||||
Magnate
|
Quote:
![]() I didn't get to comment on YOUR First infusion! Glad to hear it was an uncomplicated day! ![]() How did you feel when they started the infusion? Relief? Joy? Terror? ![]() How are you feeling now?? I know for me, the whole process of fighting for Tysabri came down to when I signed the paperwork with the doctor. I heard a song on the radio out in the office- David Bowie~ "Grounds Control to Major Tom" I told the doc that the song said it perfectly...commencing countdown, engines ON! A month later I heard the song again and it raised every hair on my body when the nurse turned on the pump and I watched that first drop. It had been 26 months of waiting and fighting. I had tears in my eyes and the nurse was blown away when I told her about what had happened during the previous 26 months. I still think of those moments at the start of every infusion! and yes...boring is VERY GOOD! ![]()
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
|||
![]() |
"Thanks for this!" says: |
|
|
![]() |
||||
Thread | Forum | |||
LDN Information & Check-in 2 | Multiple Sclerosis | |||
Tysabri Information & Check In | Multiple Sclerosis | |||
LDN Information & Check In | Multiple Sclerosis | |||
Part 2...Medicare Part D/Prescription Coverage | Parkinson's Disease |