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Old 05-21-2010, 02:26 PM #11
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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I had infusion # 39 yesterday, with no problems and no concerns.

It was also my third anniversary since I started Tysabri. I've missed one infusion. Since I started I haven't had a relapse. My MRI showed no new lesions, no enhancing lesions. My doc said I am among the 34% who show no clinical signs of disease activity. I have no signs or symptoms except for the lingering spasticity and fatigue.
My MRI report said that the MRI was "unremarkable". It's the only time I have liked being unremarkable!

The assay is in the works. He says he should have it in hand in 2 weeks. He says that everyone who is tested will have to listen to the informed consent speech, and the informational speech, but that the assay is a simple blood draw and that results will be available in 4-6 weeks and that they WILL be releasing the results to the neurologists. He says that the test has a supposed 2% false negative result at this time and that those who test negative will be retested in six months.

I for one am looking forward to being tested so I can move forward with my choice of treatment. Here's hoping that all of us who are tested come out negative!!

I hope everyone's doing well!!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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