FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
#11 | |||
|
||||
Magnate
|
I had infusion # 39 yesterday, with no problems and no concerns.
It was also my third anniversary since I started Tysabri. I've missed one infusion. Since I started I haven't had a relapse. My MRI showed no new lesions, no enhancing lesions. My doc said I am among the 34% who show no clinical signs of disease activity. I have no signs or symptoms except for the lingering spasticity and fatigue. My MRI report said that the MRI was "unremarkable". It's the only time I have liked being unremarkable! The assay is in the works. He says he should have it in hand in 2 weeks. He says that everyone who is tested will have to listen to the informed consent speech, and the informational speech, but that the assay is a simple blood draw and that results will be available in 4-6 weeks and that they WILL be releasing the results to the neurologists. He says that the test has a supposed 2% false negative result at this time and that those who test negative will be retested in six months. I for one am looking forward to being tested so I can move forward with my choice of treatment. Here's hoping that all of us who are tested come out negative!! I hope everyone's doing well!!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
|||
![]() |
"Thanks for this!" says: |
|
|
![]() |
||||
Thread | Forum | |||
LDN Information & Check-in 2 | Multiple Sclerosis | |||
Tysabri Information & Check In | Multiple Sclerosis | |||
LDN Information & Check In | Multiple Sclerosis | |||
Part 2...Medicare Part D/Prescription Coverage | Parkinson's Disease |