[jiggered]

I think the cold weather is affecting my neuralgia. What has your experience been with this??

[Friend2U]

I have only experienced a small amount of neuralgia, but I 'think' the cold air hitting my face has caused it to be worse. I looked on several websites and found this about a gentle breeze,but didn't see anything that directly stated about cold weather.

Perhaps someone else will have a better answer for you. Until then....

"Even a gentle breeze blowing on the face can trigger pain. Known causes include multiple sclerosis or tumours pressing against the nerve."

http://www.betterhealth.vic.gov.au/b...explained?open

[Dejibo]

The cold air makes me more spastic. I become stiff and clunky. I think because the circulation slows down it may affect the nerves. I dont know for sure.

[SallyC]

Yes, Jigg, I believe the cold can trigger a few MS symptoms....just as the Heat also does. I still prefer the cold to the heat.

I'm a rag in the summer but I am invigorated in the cold. The extremes of hot and cold are not good for any of us. I stay in my climate controlled home, during those times.

Take care..

[dmplaura]

Cold causes constriction if I'm not mistaken (coloring book medical knowledge here, lol) and I know being in cold for me results in my neuralgia pains being more pronounced.

When I have attacks of pain, migraines, headaches etc.... unlike many MSers who can't stand them, the best 'cure' for me is a steaming hot bath. It seems the heat opens things up and the pain starts to fade away.

[brainfreeze]

I have yet to receive my diagnosis, although I'm getting closer. I too, have noticed more nerve pain lately. I have alot of numbness, tingling and pain in my left leg, from butt to foot. Lately, at night, it drives me nuts. Burning, tingling pain and takes forever to relax enough to sleep. I was offered neurontin for this a few months ago, but declined because I take enough pills and really didn't want to add any more to the list, BUT, ready to call and request a prescription.

[SallyC]

Originally Posted by brainfreeze

I was offered neurontin for this a few months ago, but declined because I take enough pills and really didn't want to add any more to the list, BUT, ready to call and request a prescription.

Don't rush. From what I've been reading lately, Neurontin is overprescribed, habit forming and probably shouldn't be taken for MS, at all.

I tried it, made me dizzy and sick and I would have had to build up to a gigantic amount, for it to do any good. I'd rather have an Aleve or Bayer, once in awhile than be zombi on Neurontin and Baclofin.

[dmplaura]

Originally Posted by SallyC

Don't rush. From what I've been reading lately, Neurontin is overprescribed, habit forming and probably shouldn't be taken for MS, at all.

I agree with SallyC based on my own experience with Neurontin/neuralgia. It did nothing and the withdrawal was fierce.

[nemsmom]

Originally Posted by dmplaura

I agree with SallyC based on my own experience with Neurontin/neuralgia. It did nothing and the withdrawal was fierce.

Okay I'm on Neurontin and I hate it! I hate the way it makes me feel (can't even stand to walk because of being so dizzy and light headed). I hate it so much I asked my doctor to take me off of it! I didn't feel it was doing me any good and it causes terrible side effects. I can only take it at night. So my doc said sure you can stop, just go ahead and stop all at once Yeah, I tried to taper off, then I realized it actually was handling the horrible burning pain in my legs. I'm also on Tegretol for Trigeminal Neuralgia and Amitriptyline for a headache that never went away for three years. That is the only thing to help my headaches, they're still there, just not as bad. But the Tegretol and the Amitriptyline do nothing for the burning in my legs. I have backed the dosage of the Neurontin down and I wont let them up it for anything other than if my leg pain worsens now. I get it now that it does nothing for my other pains.

I would love to come off of all these medicines, but being able to function is important and so far I have not found any other way to do that.

So Neurontin does suck, but it does help with at least one pain for me.

If you need medicine and can't tolerate the pain you're in, talk to your doctor. But if the Neurontin doesn't work ask your doctor to find something else for you to try.

I hope you find something that helps!

[dmplaura]

Originally Posted by nemsmom

I'm also on Tegretol for Trigeminal Neuralgia and Amitriptyline for a headache that never went away for three years. That is the only thing to help my headaches, they're still there, just not as bad.

I'm glad you've found relief with the combination of medications, I too had a headache that never ceased for at least 2 years. I can understand how awful it is to live through that.