Hi Frank,
I haven't been told I'm SP,but I have a strong suspicion I am at this point too. I've been on Copaxone for the past 9 and a half and my MRI this past November showed lesions on my C-spine,thoracic and even lumbar spine.
Although, I haven't considered an interferon in the past, I'm strongly considering asking to be switched now. I jst don't think the Copaxone is working anymore. I guess I really don't have any helpful advice just wanted to commiserate with you and let you know you're not alone.

I'm new to Beta and having a crap time of it.
Just think to yourself, if I'm the statistical user that gets the side effects, then you may be the one who doesn't. Give it a go. Nothing is set in stone. you can change later. Good luck.

Frank, my friend, :hug::hug:

Do your research concerning Ty. I know a couple of people who have had good results with it, but as you know, it can have serious problems (see MS thread).
I hope your docs give you ALL the info that you ask for...you deserve some relief...and the best info in order to make the best decision...
Know that you're in our hearts and in our prayers...you and Deb have both had a hard row to hoe lately, and you need to get the best treatment so that you can feel better.
Keep us up to date, and keep your chin up:grouphug:

Hope whatever game plan you guys decide on will help. Sorry to hear about the new leisons. :hug::hug:

I'd personally would stick with a sub-Q treatment, but that's me. ;) I'm a needle phobe so IM's are out, and I've had a lot of IVs in the past blow veins from them moving and rolling. (dad and bro have the same problem, so think it's a genetic thing)

thanks everyone, and yes it gets a bit perplexing at times


was told by staff no appt till mid may and i left a mes for doc saying as much, cause he is worried and that was the quickest he has read my mri's and any who i have appt at 4 pm tomorrow

not sure should i hijack my own thread or start a new one what in the heck do yall do about MS Hug, its so painful its doubling me over, if ya think new one cause some oen you also want to ask let me know ill start one with a poll,

again thank you everyone

peace

Frank,
 

So sorry you are going through this. Your neuro office should be able to give you sample packets of all the optional treatments. Anyway, that's what mine did. So I was able to review them and watch dvd's and that was very helpful. Ultimately I decided on the Beta, which my neuro agreed with, As my ms, by the time it was dx, was very active and late in the rrms state, closer to spms. I have been on it a year. I truly feel like it is helping to slow down the progression. Who knows if it reaLLY Has. But anyway, I'm not sure if this is helpful. But it was nice to have the packets to go over. The drug companies are happy to supply them.

Good luck!:hug:

MS hug
 

FYI, I was so sure I had ms hug. It was terrible like you discribe. To make a long painful story short, it ended up being my gallbladder. I had surgery, no more hug pains since then.

just so you have checked it out, it might be something else, besides the ms hug???

:hug:

Frank!

Can't add any info to the responses you've got but I can show a vote of solidarity and remind you the Moose is backing you. :hug:

Please keep us posted.

As to the hug...

We have a sectional couch. I sit straight up on the corner piece with my arms resting on the top of the couch. Sometimes heat helps. sometimes makes it worse. But generally have the arms up to shoulder height or above the head makes breathing a bit easier. :hug::hug: