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Old 04-22-2009, 01:14 PM #11
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I kind of view my health insurance like my possible future social security income...not meant to pay it all but just something to augment the funds I have to kick in myself.
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Old 04-22-2009, 01:24 PM #12
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My insurance didn't cover LDN to begin with either, but I had an "Exception Form" filled out by my doc, and it does now.

A lot of times they just haven't caught up with what's on the market, and they just need to find a code for it.

Cherie
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Old 04-22-2009, 11:58 PM #13
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Well, I have my immediate manager looking into this, and the pain doc looking into it... it is ultimately my employer that elected out of this drug in particular (they pick and choose). Now as Cherie mentioned they might just be behind the times, but at the same time they could have refused for other reasons.

All else fails, I'll go to my local chapter of the MS Society over this one. I don't know many people that can afford to pay out $500+ out of pocket per month.

Give me the card and I'll grow it myself. Sheesh.
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Old 04-23-2009, 09:44 AM #14
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But how much out of pocket does it cost to go to the doctor in Canada? Or to get an MRI?
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Old 04-23-2009, 10:03 AM #15
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Quote:
Originally Posted by Aarcyn View Post
But how much out of pocket does it cost to go to the doctor in Canada? Or to get an MRI?
Nothing . . . but we can't get a MRI at the drop of a hat either, unless it is an emergency.

If we just "want" a MRI, and there is no medical justification for it, we can get one at a private clinic for $500 - $800, usually within 24 hrs.

Cherie
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Old 04-23-2009, 08:31 PM #16
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Yup. My friend has been diagnosed with MS for 5-6 years now, and she's had 1 MRI during that entire time, 6 relapses.
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Old 04-24-2009, 11:47 AM #17
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Quote:
Originally Posted by lady_express_44 View Post
Nothing . . . but we can't get a MRI at the drop of a hat either, unless it is an emergency.

If we just "want" a MRI, and there is no medical justification for it, we can get one at a private clinic for $500 - $800, usually within 24 hrs.

Cherie
That sounds pretty quick and cheap to me. Definitely worth it if someone knows there is something wrong and is looking for answers. Not sure how much they cost here but my insurance gets billed well over $1,000.
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Old 04-25-2009, 01:36 AM #18
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isnt it hard to light to the liquid spray

I hope it helps Laura enough is enough
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Old 04-25-2009, 10:50 AM #19
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Quote:
Originally Posted by dmplaura View Post
Yup. My friend has been diagnosed with MS for 5-6 years now, and she's had 1 MRI during that entire time, 6 relapses.
I've had it at least 18 yrs, and have only had 1 MRI during that time. (That was by choice too though ...).

MRI's are generally only used for diagnostic purposes here. Both my daughters have had one, for different reasons (and "non-emergency"), and they had them within a week - month. If they REALLY think something is there, they will go looking for it, but not just for looky loo purposes.

Cherie
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Old 04-25-2009, 05:14 PM #20
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Yeah, what you said Cherie. Mine's a follow up 'look' into the inevitable. Either something they can't see, or "oh look, another lesion!". Hence it's on the back burner.

Frank, sadly I can't even get the prescription filled lol. It's just been sitting here in my wallet. I can't afford $500+.

I called the MS Society on Friday, and my pain doc's office and left a message (they were not in on Friday).

I'm to go back on May 22 to see the pain doc again, and it's supposed to be a follow up to see how the Sativex is helping me... that'll be kind of tricky if I can't even get the medication due to cost huh?
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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