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Old 04-20-2009, 04:50 PM #1
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Default Med question - stimulants

I know some with MS use A.D.D. meds for fatigue but has anyone heard of or used the meds for cognitive problems and has it helped.

I'm in an interesting position - I am diagnosed with A.D.D. but it's complicated because of MS (congnitive) and PTSD which I have had since I was a kid.

If A.D.D. meds help with MS cognitive problems (not a dx'd symptom for me) then if the med helps I might not know if it really is A.D.D., MS or trauma (anxiety, panic attacks, PTSD which can also cause A.D.D. type symptoms)

I need to make an appointment with my neuro but, in the meantime if you have used any of the A.D.D. meds for MS cognitive problems, not fatigue, I would love to hear your experience.
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Old 04-20-2009, 06:20 PM #2
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Don't know Nadda about this subject, just wanted to send you some..
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Old 04-21-2009, 06:11 AM #3
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I don't know whether your doc will prescribe them off label like that. I heard the NPR piece yesterday too, if that's what brought it mind. I use aderral (sp) and I don't find it makes me think all that much better but it does keep me up. You may consider just saying you're tired too.
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Old 04-21-2009, 07:25 AM #4
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Quote:
Originally Posted by KAOheim View Post
I don't know whether your doc will prescribe them off label like that. I heard the NPR piece yesterday too, if that's what brought it mind. I use aderral (sp) and I don't find it makes me think all that much better but it does keep me up. You may consider just saying you're tired too.
I am starting Focalin this morning, just took my first dose. Since I have been diagnosed A.D.D. I am not using Focalin off label. I am looking for the med to help with it's intended purpose - concentration, focus, impulse control, organization, ect. I am not using if for fatigue, I don't need it for that.

I am just curious if anyone has used one of the A.D.D. meds for MS cognitive problems.

I don't know anything about the NPR your referring to but would be interested.
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Old 04-21-2009, 07:25 AM #5
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I used Provigil for fatigue, but found I was just hyper enough (in a good way of trying to overachieve) and like on a hyper kid, it had an adverse affect of bringing me down. Not being real hyper, made me really tired and found (as in many ADD+H kids (as they told me when older, making their own decisions and quit) clouded their brains. but remember every one is so different.) Have some had sucess with the Alzheimer Drug - Arrocept or something?
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Old 04-21-2009, 07:33 AM #6
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Quote:
Originally Posted by kicker View Post
I used Provigil for fatigue, but found I was just hyper enough (in a good way of trying to overachieve) and like on a hyper kid, it had an adverse affect of bringing me down. Not being real hyper, made me really tired and found (as in many ADD+H kids (as they told me when older, making their own decisions and quit) clouded their brains. but remember every one is so different.) Have some had sucess with the Alzheimer Drug - Arrocept or something?
I used Provigil for fatigue for a while. It made me very shaky (jittery) and that's a side effect I cannot handle.

A side effect of Provigil (for me) that I like was I found myself more focused, more clear headed. I have heard Provigil is being looked at in the use of A.D.D.
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Old 04-21-2009, 09:33 AM #7
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I guess it was just a coincedence. The story was on the number of college students that are using adhd drugs to facilitate or improve their studying. The comparison was made to steroids for athletes in the sense that it may be an unfair advantage to those who choose to use. Not really relative to us but the story did make me think about stimulants. Here's a link

http://www.npr.org/templates/story/s...ryId=103274576
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Old 04-21-2009, 10:11 AM #8
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Quote:
Originally Posted by KAOheim View Post
I guess it was just a coincedence. The story was on the number of college students that are using adhd drugs to facilitate or improve their studying. The comparison was made to steroids for athletes in the sense that it may be an unfair advantage to those who choose to use. Not really relative to us but the story did make me think about stimulants. Here's a link

http://www.npr.org/templates/story/s...ryId=103274576
Thank you for posting the link.

This was story was on our local news about 2 weeks ago. I was rather suprised.

I do not take the A.D.D. meds lightly. My DD has been dx'd 10 years with A.D.D. and I have seen the bad side of these meds. After being On Ritalin for a few years she suddenly became suicidal and violent.

I have been told by 3 different mental health professionals since 2004 that I also have A.D.D. but I have choosen to ignore it untl now. A.D.D. can be hereditary.

Part of me wonders if I am dealing with MS cognitive problems and not A.D.D. (denial? ), Hence the reason I am asking if anyone with MS has used these drugs for cognitive problems and has had them help.

Again, thank you.
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Old 04-21-2009, 10:44 AM #9
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I use Provigil (sparingly) for fatigue but it actually helps me more with my cognitive problems than it does with my fatigue.

When I take it I'm very focused on whatever I'm doing, I can concentrate even with background noise and my word recall is much better. It also zaps my appetite (just a bonus!). I can still take a nap when I take it but I usually don't as I'm more able to get involved in tasks and projects that I normally wouldn't have been able to do.

It's sooooo expensive (about $700 for a 30 day supply) so I only take them when it's absolutely necessary for me to be alert and focused.
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Old 04-22-2009, 10:08 AM #10
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My neuropsych said that she felt strongly that A.D.D. meds would help with my cognitive issues and I do not have A.D.D. at all. She feels that they would combat both the fatigue and the cognitive stuff. I haven't pursued it yet, but I'm still thinking about it. My neuro actually sent me to her to see what her opinion was before he would be willing to rx them off label for MS fatigue.
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