NeuroTalk Support Groups - Oral steroids?

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)

- - Oral steroids? (https://www.neurotalk.org/multiple-sclerosis/85692-oral-steroids.html)

PolarExpress

04-28-2009 11:07 PM

I've had MS for several years and was told it was Primary Progressive as I never had relapses..Well, starting shortly before Thanksgiving and lasting till the beginning of February, I had what was (for me) the mother of all relapses..Couldn't walk without a cane, couldn't drive more than a short distance, couldn't feel anything on the right side of my body. I was put on oral pred with a taper the first week of Feb, and the sx were nearly gone in just a few days..I hate 'em, but they do work.

Desinie

04-30-2009 12:16 AM

Quote:

Originally Posted by jackD (Post 502668)

Last time I reviewed the med literature (mostly NIH abstracts) it seemed that oral steroids alone was NOT recommended and that even the taper was unnecessary and that the oral steroids made Optic Neuritis worse over time.

jackD

I'm not taking the steroids for ON. I don't have ON, nor have I ever, thankfully. What I'm taking is the Medrol Dose Pack alone and in itself is a tapering dose. I'm not on IV steroids.

Snoopy

04-30-2009 07:10 AM

Desinie,

I used oral prednisone once in "86" and once in "87." Oral prednisone and ACTH were the only options back then.

I don't like steroids and have choosen not to use them for subsequent exacerbations.

Did the oral prednisone help? I really don't know :rolleyes: The first time I was give oral prednisone was after my diagnosis, I had been in an exacerbation through the diagnostic process. Once oral prednisone was started my exacerbation lasted another 4 to 6 weeks.

The second exacerbation w/oral prednisone lasted 4 to 6 weeks.
My third exacerbation I waited out, no steroids and it lasted 4 to 6 weeks....go figure :rolleyes:

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