advertisement
Reply
 
Thread Tools Display Modes
Old 05-01-2009, 12:49 PM #1
hollym's Avatar
hollym hollym is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
hollym hollym is offline
Senior Member
hollym's Avatar
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
Default Help for Twitching

I have been having a problem with a twitch in my face for about a week now. It is starting to really bug me. Has anyone ever treated a twitch like that with drugs? If so, which ones? It is the muscle directly to the left of the bottom of my nose, so it is like the bottom of my cheek is twitching.

It is not constant throughout the day, but occurs every day repeatedly. I'm wondering if the baclofen I am taking is actually dampening it down somewhat.
__________________
Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


.
hollym is offline   Reply With QuoteReply With Quote

advertisement
Old 05-02-2009, 12:07 AM #2
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default

As one twitcher to another--No.

Mine were my eyelid, my cheek and my upper and lower lip, all on the right side of my face.

I tried everything to get rid of my twitches, nothing worked.
The doc said it was caffeine, i cut caffeine, chocolate?..ditto
More sleep...slept more, stress?...did everything I could to cut stress, even if it was good stress!

I used to press on the twitches, but when they were all happening at once I looked like I was playing "Twister" with my fingers, trying to hold pressure on every spot!

The doc said it's not MS...I just kept on twitching and got a new doctor.

The new one said...it's MS! It's fasciculations. It will go away sooner or later OR we can inject some Botox in there to stop it.

I'd have tried the Botox if it hadn't let up.
(he said he could use the rest of the syringe on some of my more prominent wrinkles!)
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (05-18-2009)
Old 05-02-2009, 12:23 AM #3
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Default

My lower left eyelid twitches at times. There's no stopping it either, it just lets up eventually. It can go on for minutes at a time. And it's very obvious when it happens.
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (05-18-2009)
Old 05-02-2009, 12:53 AM #4
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

I had 1 whole side of my face twitching for a couple months. I just waited it out. It was really annoying for sure.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (05-18-2009)
Old 05-02-2009, 01:48 PM #5
hollym's Avatar
hollym hollym is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
hollym hollym is offline
Senior Member
hollym's Avatar
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
Default

Pressing on it does work for a short period of time.

Botox is an interesting idea for sure. If this doesn't go away soon, I'll be asking about that at my next neuro appt in August. It hasn't been as bad today, but I got more sleep last night. It's still doing it, just not as constantly as yesterday.
__________________
Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


.
hollym is offline   Reply With QuoteReply With Quote
Old 05-02-2009, 02:53 PM #6
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Holly, stress can cause this. And I'd say you've had more than your fair share lately. It'll probably stop just as suddenly as it started but I'd bet my paycheck ( I don't have one anymore!!) that it's stress.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (05-18-2009)
Old 05-02-2009, 09:47 PM #7
lee53 lee53 is offline
Junior Member
 
Join Date: Sep 2008
Location: california
Posts: 8
15 yr Member
lee53 lee53 is offline
Junior Member
 
Join Date: Sep 2008
Location: california
Posts: 8
15 yr Member
Crazy medicine maybe??

Quote:
Originally Posted by hollym View Post
I have been having a problem with a twitch in my face for about a week now. It is starting to really bug me. Has anyone ever treated a twitch like that with drugs? If so, which ones? It is the muscle directly to the left of the bottom of my nose, so it is like the bottom of my cheek is twitching.

It is not constant throughout the day, but occurs every day repeatedly. I'm wondering if the baclofen I am taking is actually dampening it down somewhat.
Well I twitch all night and it's my legs & arms. Also when I'm sitting and start relaxing I begin twitching, maybe it's the morphine I am on, not sure. It's annoying to my husband at night, sometimes I twitch so hard I wake myself up.
Good Luck and bless you,
LeeAnn
lee53 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (05-18-2009)
Old 05-17-2009, 09:59 AM #8
Bearygood Bearygood is offline
Member
 
Join Date: Jan 2008
Posts: 970
15 yr Member
Bearygood Bearygood is offline
Member
 
Join Date: Jan 2008
Posts: 970
15 yr Member
Default

Like Wiz, I have been having the same twitching issue in my lower left eyelid for over a month. I actually didn't know until this thread that these involuntary twitches were called fasciculations (thanks!) Mine have been roving and intermittent, eventually resolving, and the eye thing was new to me.

Anyway, I read up on it a little bit and saw that it often happens when you don't drink enough water, or that not being well hydrated enough can at least exacerbate fasciculations. Well, I realized I had been guilty as charged! I had been very good about drinking enough water for a long time (needed for other things to function better as well, including the brain). Anyway, I re-disciplined myself about 10 days ago and I have to tell you, although the fasciculations have not completely disappeared, they are MUCH better and less frequent!

Make sure you're drinking enough water -- it might help! I know for many people it's hard. I have a pitcher that I fill up at the beginning of the day and try to make sure it's empty by the time I retire for the night (that is, when I'm behaving! )
Bearygood is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (05-18-2009)
Old 05-17-2009, 10:28 PM #9
Lady's Avatar
Lady Lady is offline
Senior Member
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Lady Lady is offline
Senior Member
Lady's Avatar
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Default

Hi Holly,
When I get them what I do is, okay.. this is odd: I mouthed the vowel sounds, A ,E, I, O, U. I do them very big and drastically, mouth wide open, to stretch the muscles in my whole face. I seems to relax them afterward.

I do this ten times in a row and I am good to go. Open the mouth wide, shaped like the sound of each vowel. You don't have to say them, just mouth them and say them in your head.

Do it in private, it looks as odd as it sounds. It works for me, but we all are different, so it may help some here, and you too. I hope it works for you. I used to get embarrassed at work, I would think everyone was staring at those twitches, eyes and mouth. I wanted to hide out.
__________________
LADY

May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind.


"Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't.
Lady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (05-18-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Twitching PatriciaQ Multiple Sclerosis 8 01-17-2009 08:55 PM
Twitching information Aussie99 Peripheral Neuropathy 1 08-21-2008 03:00 PM
Twitching Cheek debbiehub Reflex Sympathetic Dystrophy (RSD and CRPS) 3 05-29-2008 09:47 PM
twitching flopper Epilepsy 2 04-14-2008 08:47 AM
Twitching Aussie99 Peripheral Neuropathy 29 09-30-2007 02:59 AM


All times are GMT -5. The time now is 11:01 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.