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Old 04-30-2009, 07:45 PM #1
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Default Oldie with A New Question for all the Copax Users!

Ok as many of you know I was on Rebif had too many side effects so switched to Tysabri then had horrible kidney pain the last few infusions so decided that probably wasn't good. I have been off meds for about 10 months now and just started on Copaxone yesterday, no IPIR or whatever its called, the redmark at injection site is nonexistent unlike the whoppers I had with Rebif. The only thing I have noticed is this I am having horrible facial flushing, not immediately after the injection but a few hours later and it lasts all day although it gets better over time. It is by no means a deal breaker for me after everything else I can handle flushing but is this normal have any of you experienced this?
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Old 04-30-2009, 08:13 PM #2
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I've been on Copaxone since Dec., though I do skip, but I've honestly never had that sx...might want to write down the dates/times so you have a record to take to your neuro...
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Old 04-30-2009, 09:06 PM #3
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I've never had that reaction either. Definitely keep track of it.
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Old 05-01-2009, 05:26 AM #4
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Sheesh wondering why I am always the one getting weird side effects!?
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Old 05-01-2009, 06:09 AM #5
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Got the following excerpt from this website: http://multiple-sclerosis.emedtv.com...e-effects.html

Other common side effects (occurring in 5 to 41 percent of people) included:


* Weakness
* General pain, neck pain, or back pain
* Flushing or hot flashes
* Joint pain
* Nausea, vomiting, diarrhea, or loss of appetite
* Muscle tightness
* Flu-like symptoms (such as fever or chills)
* Sweating
* Runny or stuffy nose
* Swollen lymph nodes
* An urgent need to urinate
* Bronchitis
* Bruising
* Vaginal yeast infection
* Swelling or water weight gain
* Shakiness (tremor)
* Ear pain
* A spinning sensation (vertigo)
* Painful menstrual cramps
* Migraine headaches.
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Old 05-01-2009, 09:36 AM #6
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I had that mild flushing in the early few months, but it went away after about 6 months. it wasnt horrible, just a bother. I also get the night sweat thing. it gets much better, then it returns, then gets much better. I cant figure out what the trigger is.
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Old 05-01-2009, 11:32 AM #7
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Quote:
Originally Posted by Dejibo View Post
I had that mild flushing in the early few months, but it went away after about 6 months. it wasnt horrible, just a bother. I also get the night sweat thing. it gets much better, then it returns, then gets much better. I cant figure out what the trigger is.
Ummm how old are you Dejibo? I started getting the peri-menopause night sweats in my early 40's.

OP,
I'd run it by your Doc just to be on the safe side. Be especially mindful if it seems to get worse. Hang in there.
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Old 05-01-2009, 07:02 PM #8
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IM in my mid 40s but had a surgical menopause at 29. Had a complete removal, and wasnt allowed hormones. I did the night sweat dance for months. I was clean and clear and had not thought about night sweats for about a decade when I started copaxone. MS center says some folks have um. They are not as bad as they used to be.
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Old 05-02-2009, 06:51 PM #9
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It seems the flushing was the only side effect I have had although today no flushing! Perhaps it is the stress at work! I did get a whopping swollen red area after injecting in my thig yesterday put ice on it and it went away in a couple of hours, today again no problems shot in my booty today. Overall the red huge splotches I had on the Rebif I don't get with the copax so yay!
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Old 05-03-2009, 08:00 AM #10
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I used to get big ol pink splotches with Betaseron. They took months to go away.

I find that the flushes, or flashes are further between, and not as severe. Emotional stressers will give me an off day much more than before Copaxone.

Hang in there.
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