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Old 04-29-2009, 05:19 PM #1
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Erin524 Erin524 is offline
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Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default Just got back from my neuro

He told me that I dont need to get a new MRI like the MS Clinic is trying to push me into doing. Said that they're kind of MRI "nazi's" and that they like scanning everyone a couple of times a year. I told him that I cant afford even one MRI, and didnt care for the doctor I talked to at all. (oh, and there's the whole claustrophobia thing that really keeps me from wanting to do the MRI even if I could afford it.)

I asked to make sure he's not going to retire (he said he'll work till he's dead) and then told him I'm sticking with him or one of the other neuros in his office if he's not available. He was fine with that.

So, when the MS Clinic calls to tell me whether or not they got a grant from the MSAA for an MRI, I'm going to tell them if they got a grant, to give it to someone else who really needs an MRI, and that I'm not going to be using their neuros. I'm sticking with the one I have.

He said that so far I'm fine, and he thinks all the problems that I've had that the MS Clinic is calling exacerbations are really just pseudo-exacerbations, since it seems like we can connect all the dental problems to the flares. (and maybe one cold)

He said I just have to get the dental stuff dealt with (doing that tomorrow. yay!) and that the few flares I've been having should resolve in a bit.

He also told me that he did a short study on LDN back about 15yrs ago. (he didnt remember doing it, but I guess he was looking it up in his old records and found it) He didnt think there was anything to LDN, but said that if I really wanted it, that if I can find another doctor to give me a Rx, he said more power to me. He wont Rx it, but doesnt mind if I get it from someone else. (yay!)

What I dont understand is that he doesnt think that any of the CRABs do anything for MS either, but he still Rx-ed the Copaxone to me...but he wont give me LDN? That makes my head hurt.

Still, I like him better than the doctor down at the MS Clinic. So, I'll stick with him, and I guess I'll go searching to see if I can find someone to give me a Rx for LDN.
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