Thanks everyone. I will post as soon as there is news.

Cherie,
Hope your daughter is home
ASAP & she is well.
Sending my thoughts & prayers
your way.

Hi Cherie, I hope your daughter's illness turns out to be something that clears up soon and is not dangerous. It sounds very scary.

I had a scare with my 23-year-old daughter this summer when one foot swelled up for no reason--after all the testing, turns out it is idiopathic lymphedema, which is not fun, but at least my fears of cancer (there IS a downside to the Internet!) were not borne out.

Sending positive thoughts your way and hoping for the best for your daughter,

Nancy

Well...this morning's ultrasound confirms the blood clots in the liver but also picked up a problem with the circulation going to and from the liver which appears to be long-standing. They don't seem to be asking why or what the underlying problem is. Are talking about starting her on heparin to break up the clots but she's telling them she's not spending another night in the hospital. No one is on this weekend who knows her...just covering physicians. And she will not let me ask questions or see her chart at this point.

Cherie, Being the mother of adult children is the hardest job in the world !!!! I'm constantly telling myself " keep your mouth shut, butt out, they have to make their own decisions "

It's just so hard when we want only the best for our families. I find that droplet therapy works best. Just one little suggestion at a time. Anything more sends up a wall from the adult child unless they ask for my help. They only want you to agree with their plan etc. Best of luck and many prayers as you deal with this medical problem. Betty

BLOODY HELL! I was hoping I would come here to read that the equipment was malfunctioning and that yesterday's results were false positives. I don't suppose that she's ever had any problems with Biliary Atresia since you've said she's always been healthy?

Interesting choice with the choice of Heparin. I would think they would want to prevent more clots from forming with something akin to Lovenox rather than Heparin which has the potential for the clots to start dissolving within her liver and thus start internal bleeding within the hepatic region.

I can understand her not wanting you to ask further questions or see her chart. When I was diagnosed, my Father in Law who is a Pulmonologist at the hospital where I was admitted wanted to read my chart and discuss my case with my treating physicians. My husband vehemently objected and told him he wanted him to be "just a family member". I'm glad he did. He's been a great support to us. I know the outcome wouldn't have changed, and it was good for us to see him in "another light" other than being a physician.

I continue to wish you all well.

Chris

So sorry to hear about your daughter, Cherie. I'd much rather personally suffer pain or fear, then to see my kids go through it.

It's odd that they don't seem to be trying to figure out the cause. I guess you've done some research yourself; any ideas yet?

Prayers coming your way.

Cherie

My goodness! I am so sorry your family is going through this. My thoughts and prayers are with you.

Did your daughter end up going home? I'm hoping she can be monitored or something so the doctors can be aware of what's going on with her. You must be so worried. Please keep us updated.
Jean

I am so sorry the way things are panning out. It is so tough being a nurse and have a sick adult child that makes their own decisions. My Mom was in the hospital this week on the same unit that I retired from. Of course there were very few nurses still there. But the ones that were there let me read her chart. I feel bad now that I didn't tell my Mom I was doing it.

Cherie,

I'm sorry to hear about your daughter, and I will be thinking positive thoughts for her and your whole family.

I had a blink of a thought while I was reading through your post... you mention she is a vegaterian, and you mention the docs think it could be an infection ---- did she come into contact with any of the e-coli spinach by any chance? I did a quick google on e-coli and liver and a lot of stuff popped up.

Of course, my blink of a thought is biased by the fact that as I was reading your posts, the news was discussing the spinich/e-coli problem, but I figured I would mention it anyway just in case my blink of a thought is actually helpful.

Many positive thoughts are being thought for your daughter.

Liz