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06-03-2009, 07:42 AM
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#21 | ||
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Magnate
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Feel better Joelle.
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sox . . |
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06-03-2009, 07:46 AM
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#22 | |||
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Magnate
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Just got home from work and jumped on to see if you had posted.
Hope they found something that helped with the pain!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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06-03-2009, 08:31 AM
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#23 | |||
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Grand Magnate
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So sorry to hear this. hope you feel better soon.
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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06-03-2009, 03:27 PM
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#24 | |||
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Magnate
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Hi Joellee,
So sorry that I missed this thread until now! I'm sorry to hear about everything that you are going through at the moment - it sounds so awful! I really hope that you're feeling better now and that the hospital has gotten to the bottom of your problems!! Please keep us posted when you can and know that you are in my thoughts and prayers always!! Ali
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To the World you may be one person, but to one person, you may be the World. |
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06-03-2009, 05:57 PM
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#25 | |||
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Senior Member
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Sorry it took me so long to get back. I'm typing this on my blackberry with one eye closed ; ). I'm still doped up but not as bad as yesterday. Everything has been ruled out except ON. I'm starting IVSM soon. I despise the carp.
This has been one of my worst hospital and doctor experiences ever. I've spent so much time in tears that both eyes are swollen. I'm okay though. I'll tell you all about it once I get home. Hopefully tomorrow . Thanks for the s.
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Multiple Sclerosis-Dx May 2007 . |
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| "Thanks for this!" says: | AfterMyNap (06-03-2009), ali12 (06-04-2009), barb02 (06-04-2009), Bearygood (06-03-2009), dmplaura (06-03-2009), ewizabeth (06-04-2009), hollym (06-04-2009), Lady (06-05-2009), NurseNancy (06-03-2009), PolarExpress (06-03-2009), Riverwild (06-03-2009), SallyC (06-03-2009), SandyC (06-06-2009), soxmom (06-04-2009), Twinkletoes (06-03-2009) |
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06-03-2009, 06:10 PM
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#26 | |||
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Magnate
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So sorry Joelle. Get that carp swimming in a straight line again and get better quickly!
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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06-03-2009, 07:05 PM
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#27 | ||
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Member
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Joelle, you WILL get through this. I look forward to reading your update and hope your physical state and spirits are better very soon.
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06-03-2009, 07:30 PM
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#28 | ||
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Member
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I discussed this again with my neuro-op and told her that I'd now come across 3 people who did not present lesions. Her response was that lesions will always be present in an MRI of the orbits when the ON is in the acute stage and that it's when a lesion does not present that other diagnostic tests are necessary. My first orbital MRI lit up like a Christmas tree -- now I understand why I never had to have an EVP.
Anyway, as promised, this is one of the things I checked again and that's what she said. Just the messenger. |
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06-03-2009, 08:09 PM
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#29 | |||
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Grand Magnate
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Sorry to hear you are not feeling well, Joelle. Are your eyes swollen from whatever is going on, or from crying?
 There are several tests that can be done to try to destinguish ON from other eye problems. An opthamologist on another forum always directs people to this link as the most reliable: http://www.jandoerffel.de/on.htm I have heard of people who had ON, and didn't know it until their nerve showed palor in testing (that happened to me, years ago), but not that they can't see the ON when it is active and they test for it.  They might "conclude" it was ON when we already have a dx of MS . . . but I'm not sure how accurate that conclusion might be.I'll ask my N-O next time I'm in too ... Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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06-03-2009, 09:15 PM
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#30 | |||
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Grand Magnate
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i'm sorry you're having a rough time.
i hope you get home soon so you can recoup there. best to you.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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