[Blessings2You]

Dr. Jocular: Don’t feel sorry for me! I don’t want your pity!
MS Gohide: I can’t believe you don’t appreciate how lousy I feel.

Why are you telling ME about that activity? I can’t help plan it! I probably can’t even go! Are you just trying to make me feel bad?
Why didn’t you tell ME about that activity? I am being left completely out of the loop. Are you just trying to make me feel bad?

I am NOT going to mope and whine and complain! I’m going to wear make-up, fix my hair, dress well, put a smile on my face, have a good attitude, and live my life!
How DARE you say, But you look so good!

I don’t have to explain myself to ANYbody.
Wait, wait, let me explain to you yet another way, so you don’t get the wrong idea.

Don’t call me disabled! Don’t call me handicapped! I will NOT use the electric shopping cart!
Don’t walk so fast, can’t you see it’s hard for me to keep up?

I’m glad my family and friends respect the fact that I just don’t have the energy to have company or even to talk on the phone all the time.
Nobody visits! Nobody calls! Nobody cares!

It’s just too much effort to get dressed and leave the house.
Why don’t you ever ask me to go anywhere?

I’m just thankful for all the blessings and abilities I still have.
Waaah, I want to be like I used to be!

There are worse things out there. At least I don’t have an inoperable brain tumor.
MS sucks.

[kicker]

Is that, like, good days and bad days?

[Blessings2You]

Good days and bad days, conflicted attitude, wanting it both ways....

[kicker]

B2Y,
You always crack me up. If you were closer we could do the Lucy/Ethel thing. Think you'd be Lucy.

[Blessings2You]

I'm too fat to be Lucy. =]

[kicker]

My hair is red (dyed(, can I be Lucy? You be the smart one.

[hollym]

You speak the truth B2Y. We want it all. We want to be upbeat and keep on going and not have people notice our limitations, but then we also want people to understand our limitations. Argh!

I wish I could figure out how to balance both sides.

[SallyC]

I hear you Blessings....I surely do..

Zats me..

[kicker]

I drive DH crazy (he says), there's always two ways to approach me. And he never seems to choose correctly.

[Blessings2You]

Earlier I used the term "wanting it both ways", which was a poor choice of words. I don't want ANY of this stuff, but it is what it is.

Sometimes I think there's a lesion on my "response" nerve, and I never know more than a split second ahead how anything is going to affect me.

Kicker, my husband rarely gets it right either, though God knows he tries. If he says something sympathetic, I feel as though he's being condescending or giving me up for dead, and then I cry.

If he says something he perceives to be encouraging, I feel as though he's minimizing my situation or not taking me seriously, and then I cry.

And if he doesn't say ANYTHING, I wonder why he isn't saying anything, and then I cry.

This isn't all the time, of course, but just when this stupid disease is playing mean tricks on my sensitivity and emotions.