[Friend2U]

Just wondering? I legs and feet have just gradually changed from tingling to more of a numbness. Now, here lately, they just seem to hurt and ache. I'm wondering, is the the natural progression? Is more increase in pain what I have to look forward to???

Not trying to complain, things could be SO much worse. Just wondering?
Thanks!

[SallyC]

There is nothing natural about it, Friend, but yes, if you start out as RRMS, that is the usually progression to SPMS. For some lucky devils, that progression can slow down, with the right med???

[Friend2U]

Thank you for telling me that. I really wasn't sure. It just seems like some things are just gradually getting worse.

The input I get here is so very helpful... to answer those questions that arise or just pop into my head.

Thanks

[pud's friend]

I'm not ready to believe that my pain is a progression to SPMS.
When my numbness subsides and is replaced by pain, I think mine is nerve regeneration or overworked muscle or fatigue.
Never occured to me that it was the path to SP!
No no no. Just call me Miss Denial if you like but not SP.

Hope you're going ok.

[Friend2U]

Mostly I try not to think about it. But when weird things are constantly going on in your body, it's hard not to have a million concerns and questions.

Last night I couldn't sleep because I kept feeling my legs were floating above the bed. And every time I'd almost fade off to sleep, I'd have that rush going from my head to my toes.

Thanks Pud's Friend for sharing.

[Erin524]

I dont understand.

Are you saying that if you've got an appendage that's tingling, and it starts hurting instead of tingling...that, that means you're progressing from RRMS to SPMS??? That doesnt quite sound right to me. At least that's how I interpreted SallyC's response.

I would think that if your numb area is tingling and starting to have pain where there was once numbness, then that would be the nerves trying to regenerate after an exacerbation/flare, and that maybe after awhile the pain might lessen and you'll end up with (hopefully) normal sensation again.

I think I'd rather have pain than numbness. At least when it hurts, you can tell that it's there, when you're numb, you can never quite tell where the numb appendages are, and numbness is a hell of a lot more disturbing of a sensation than pain is to me.

[SallyC]

Boy, you really have to be careful with the way you say things here...My Bad.

Not everyone automatically progresses from RRMS to SPMS. I believe I said that is the usual way it happens. Noone's MS is the same as another's.

Usually when your relapses stop and you have lasting SX with more spasticity(pain), you have, more than likely, progressed to SPMS. That is the way it happened for me and I believe that is the way it happens for most..not all, RRMSers.

So Sorry, Friend2U, if I didn't make myself clear.

Originally Posted by SallyC

There is nothing natural about it, Friend, but yes, if you start out as RRMS, that is the usually progression to SPMS. For some lucky devils, that progression can slow down, with the right med???

[Kitty]

My right hand has been numb now for a couple of years. Recently (well, within the last 6 months) it's begun aching and then I get the "zaps" that feel like an electric shock. But, I have gotten back some use of that hand even though it's still numb. I still haven't figured out how something can be numb and hurt at the same time.

[ewizabeth]

I've had instances of days when I'd be walking with excruciating shooting pains in my legs, then later in the day it would be numbness, and around it goes. I think it just depends on whatever sensation the brain wants to "read" from stress or whatever. You know what I mean, the crazy miscommunication of the signals.

It's happened in different areas too, hands, feet, arms, etc...

[Friend2U]

Originally Posted by ewizabeth

I've had instances of days when I'd be walking with excruciating shooting pains in my legs, then later in the day it would be numbness, and around it goes. I think it just depends on whatever sensation the brain wants to "read" from stress or whatever. You know what I mean, the crazy miscommunication of the signals.

It's happened in different areas too, hands, feet, arms, etc...

I hadn't thought of it that way, but it makes as much sense as anything!