[Coqui5]

Hi, I'm new to this site, please excuse any mishaps. I'm seriously considering going to Cologne, GE for the Stem Cell therapy for MS. Has anyone been there for stem cell therapy for MS, or knows anyone who has? I have Secondary Progressive MS and have all sorts of symptoms like; spasms, difficulty walking, footdrop, weakness, etc. It comews with the territory. Any feedback related to the XCELL Clinic will be greatly appreciated.

[MooseasaurusRex]

One big, warm, tight, hug, handshake and howdy, moose sized welcome to the site. This place is amazing!

I have MS as well and I was stationed in Germany for 4 years back in the 90s but I'm not familiar with the XCELL program you spoke of. I'm definitely interested in more info on this (and I bet others here are too) so please keep us posted on your progress.

You are not alone.
You are one of us.
And we are here to help.

I am the MonSter that MS fears.

[Dejibo]

I just wanted to wave hello, and welcome

[azoyizes]

Hi Coqui, and welcome to NeuroTalk! I also have MS, and I think you will find this to be a great forum. Lots of very nice people hang out here.

I'm also interested in stem cell treatments. Please, do keep us informed.

[SandyC]

I don't know anyone who has had the treatment but I do know Germany is a great place for treatment of MS. Jim was dx'd by German doctors within 4-5 months. They were awesome! Let us know what you find out and does your insurance cover the treatment in Germany?

[Coqui5]

Hi! I can't post links here yet. Google xcel in Germany. I'm currenyly on rearch mode. Apparently there has been a few patients that have gone for treatment in Costa Rica that attest to some remarkable improvement in balance spasticity, etc. Have a great day!

[Judy2]

Just wanted to say Hi! and Welcome to the group! I too will be watching your progress if you go with the xcel treatment since I'm also spms. Please keep us posted and the best of luck to you in your ms journey!

[RedPenguins]

I looked into this in Feb 2008. It costs a lot of money and there really isn't much data to support it. Not to mention, insurance won't pay a lick for it.

Have you looked into HiCy at Hopkins (Baltimore) or at Rush (Chicago)? Basically the treatment is the precursor to a bone marrow treatment where they kill of your immune system and then reboot it...hopking to kill the MS in the mix.

Check out www.thisisms.com - they have info on lots of different treatments - all on different boards, so easy to find.

I did HiCy at Hopkins and insurance covered it, fyi.

~Keri

[Coqui5]

Originally Posted by MooseasaurusRex

One big, warm, tight, hug, handshake and howdy, moose sized welcome to the site. This place is amazing!

I have MS as well and I was stationed in Germany for 4 years back in the 90s but I'm not familiar with the XCELL program you spoke of. I'm definitely interested in more info on this (and I bet others here are too) so please keep us posted on your progress.

You are not alone.
You are one of us.
And we are here to help.

I am the MonSter that MS fears.

I will keep you informed. I also lived in Landtuhl for 3.5 years in the early 90's, when I was walking straight. Ha!

[Coqui5]

Originally Posted by SandyC

I don't know anyone who has had the treatment but I do know Germany is a great place for treatment of MS. Jim was dx'd by German doctors within 4-5 months. They were awesome! Let us know what you find out and does your insurance cover the treatment in Germany?

Hi! As for the insurance, no, it will not cover it. The average cost for tx is approx 10,000 USD. Their site is under Xcel. There are other places like; Costa Rica, China, Panama, etc.