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Old 06-25-2009, 12:14 AM #1
zapalicious zapalicious is offline
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For more research, Google for:
  • Intracranial Venous Haemodynamics in Multiple Sclerosis
  • Zamboni's "The Big Idea: Iron-dependent inflammation in venous disease."
  • Doppler Haemodynamics of Cerebral Venous Return
  • The value of cerebral Doppler venous haemodynamics in the assessment of multiple sclerosis.
  • Dr. F. Alfons Schelling
  • 7T MRI: New Vision of Microvascular Abnormalities in Multiple Sclerosis


*edit*


Several members have already had stents put in, others are about to join them. I am considering going out there and having my veins scanned and potentially stented, myself - depending on how my insurance might cover it.

Last edited by Jomar; 06-25-2009 at 01:04 AM. Reason: per guidelines - new member linking/ other forums
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Old 06-25-2009, 12:36 PM #2
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Quote:
Originally Posted by zapalicious View Post
For more research, Google for:
  • Intracranial Venous Haemodynamics in Multiple Sclerosis
  • Zamboni's "The Big Idea: Iron-dependent inflammation in venous disease."
  • Doppler Haemodynamics of Cerebral Venous Return
  • The value of cerebral Doppler venous haemodynamics in the assessment of multiple sclerosis.
  • Dr. F. Alfons Schelling
  • 7T MRI: New Vision of Microvascular Abnormalities in Multiple Sclerosis


[COLOR="Purple"]*edit*[/COLOR

Several members have already had stents put in, others are about to join them. I am considering going out there and having my veins scanned and potentially stented, myself - depending on how my insurance might cover it.
Have the stented people been helped? Are these MS'ers RR people or the progressive types?

I assume that there are particular doctors that are doing this procedure, who and where are they?

gmi
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Old 06-25-2009, 02:38 PM #3
zapalicious zapalicious is offline
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Quote:
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Have the stented people been helped? Are these MS'ers RR people or the progressive types?

I assume that there are particular doctors that are doing this procedure, who and where are they?

gmi
In the USA, it's all about Dr Dake at Stanford.

*edit*

Last edited by Chemar; 06-25-2009 at 03:22 PM. Reason: copyright
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Old 06-25-2009, 03:38 PM #4
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*edit*

I'll be brief - so far, about a half dozen people have had venous stents surgerically done. Every MS patient who has had the advanced new MRV scans done has been found to have significant narrowing of their cerebral-draining veins (85-100% occlusion in one or both jugulars, etc)

No one has had this done for more than a month or two, but early results are promising: patients have reported less fatigue, less heat sensitivity, less pain, more energy, better mood, etc.

Only time will tell if lesion formation and relapses are halted - or if this might give the body some room to actually heal past damages.

Hope it helps.
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Old 06-25-2009, 05:08 PM #5
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Any word if insurance is covering this treatment?

~Keri
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Old 06-26-2009, 12:09 AM #6
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Yes they are, since blocked jugular veins are a medical problem that demands fixing, even outside this theoretical MS framework. (Out of Network coverage rates may apply ;)
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Old 06-26-2009, 01:50 AM #7
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zapalicious both private medical ins and Medicare will not pay for blocked jugular veins, until the blockage reaches 75 percent or more with blockage.

In other words, if the blockage is 60 percent they will not pay for it. Doppler scans can read the percentage, but a vascular surgeon has protocol. That is for the neck only.

As for the head, which I think they are referring to, that is a brain operation, is is not?

If you pay for the whole thing, then you can get whatever you want done. Shents or mesh are not usually used unless the walls are ballooned, too thin or damaged in some way. JMO

Elective surgery, as prevention, seems extreme to me.
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