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-   -   My Cesamet update :) (https://www.neurotalk.org/multiple-sclerosis/91832-cesamet-update.html)

dmplaura 07-02-2009 06:06 PM

Quote:

Originally Posted by ali12 (Post 532144)
Yay!!! That is GREAT news Laura, i'm SO glad to hear that your pain has decreased so much!!:hug:

I hope the med continues working for you for a very long time!!

Thanks Ali, I hope so as well!

Lady 07-07-2009 08:36 PM

Hi Laura,
I'm glad that you found a pain medication that works for you.:) How long can you be on it? Is it for short term use or will they rx it for you indefinitely?

It must feel good to finally get rid of that head and neuralgia pain. I hope it keeps working for you. Do they increase the dosage for you, or do they let you take it however you want?

Are you allowed to drive on this medication? Sorry for all the questions. I know it's for chemo patients, I just wanted to know how it effects people who use it off-label. Curious people want to know (me). :)

dmplaura 07-08-2009 07:39 AM

Hey Lady!

From what I understand I can take this indefinitely. They worked me up gradually to my current dose (which I'm finding a bit tougher to adjust to).

My #1 complaint about the drug is it makes me so drowsy. Other than that, I don't experience side effects that I can really notice. So if you have problems with fatigue, I'd imagine the adjustment period would be tougher.

In my case, I take it daily. I'm not sure if he uses different doses for other people.

It's still taking care of the pain, so that's what matters most right now! I hope it keeps working too!


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