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Old 07-02-2009, 06:06 PM #11
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Quote:
Originally Posted by ali12 View Post
Yay!!! That is GREAT news Laura, i'm SO glad to hear that your pain has decreased so much!!

I hope the med continues working for you for a very long time!!
Thanks Ali, I hope so as well!
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2004 to present - Trigeminal Neuralgia
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March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 07-07-2009, 08:36 PM #12
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Hi Laura,
I'm glad that you found a pain medication that works for you. How long can you be on it? Is it for short term use or will they rx it for you indefinitely?

It must feel good to finally get rid of that head and neuralgia pain. I hope it keeps working for you. Do they increase the dosage for you, or do they let you take it however you want?

Are you allowed to drive on this medication? Sorry for all the questions. I know it's for chemo patients, I just wanted to know how it effects people who use it off-label. Curious people want to know (me).
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Old 07-08-2009, 07:39 AM #13
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Hey Lady!

From what I understand I can take this indefinitely. They worked me up gradually to my current dose (which I'm finding a bit tougher to adjust to).

My #1 complaint about the drug is it makes me so drowsy. Other than that, I don't experience side effects that I can really notice. So if you have problems with fatigue, I'd imagine the adjustment period would be tougher.

In my case, I take it daily. I'm not sure if he uses different doses for other people.

It's still taking care of the pain, so that's what matters most right now! I hope it keeps working too!
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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