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Old 07-10-2009, 03:07 PM #11
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Like RW when I was diagnosed it was O.N. and cognitive stuff. I found it got worse during the heat. Don't you live in a hot climate, Kitty? Yes, it is so frustrating to have the word recall problem!! And every once in awhile I say something backward or use a word that makes no sense at all in the sentence and everyone around you kind of laughs! I did find that when I went on Tysabri most of this went away.
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Old 07-10-2009, 08:43 PM #12
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Quote:
Originally Posted by coletaterbug View Post
Sometimes I laugh at myself because if you have ever said some stuff all wrong it can make for some interesting conversation lol.
I always know when I've said the completely wrong word when my DH and DD start to snicker. Then I laugh and say ok, tell me what I just said. It took a while for them to learn that they can snicker and laugh when I do this but I'd rather have them laugh so I can laugh right along with them.
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Old 07-12-2009, 10:18 PM #13
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When I'm in a resentful mood, I resent that symptom the most. The reason is that the way I walk isn't the essence of who I am. The way I THINK is. And in that sense, I'm not me anymore.
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You got it exactly. And much of the time I really don't LIKE the person I am now. I feel like I've lost most of my better qualities. I'm not talking about forgetting words, but a whole new twisted way of processing thoughts and emotions.
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Old 07-13-2009, 11:17 AM #14
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Unhappy What help is there!

This is my most frightening sx! It terrifies me and will ultimately cause me to retire early. I am a legal secretary, and like nurses, etc., I can't really afford to be forgetful. Sure no one's going to get sick or die if I make a mistake or forget to do something, but bad things will happen, I will catch crap for it, I will feel awful, stupid, forgetful, and possibly lose my job.

This is scary and depressing, and when the fog kicks in, like lately (after being quiet for a year), my depression gets worse, which increases the fog, which stresses me more, which increases the forgetfulness, which makes me more depressed, and I just want to go home right now and cry.
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Old 07-17-2009, 08:13 AM #15
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My partner and I have separate calendars and I put everything he needs on his. He has no idea what day it is, what month and what date. He's a night worker and forgets everything. He can hire a dvd with no idea he rented it maybe a month earlier. Takes him about 30 minutes to work it out...

Well I used to mock him something terrible for his memory.

Now he helps me out...
I haven't a bloomin' clue what's happening most of the time !! How liberating it is too !!!

I vividly recall setting up a syringe driver for the last night of a patients life and not being able to hold things properly. I commented I had gotten clumsy recently.. and that was the beginning for me. I hate lying to colleagues too and hiding my clumsyness and dropsies.
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Old 07-17-2009, 04:32 PM #16
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It really gets me. I feel horribly guilty for taking my paycheck (Dr. Laura would have a fit ). Fact is I can't really do my job anymore and they're so nice in letting me hang around. I'm not completely useless but I'm nothing like the go getter I used to be either. If it weren't for insurance I'd be doing something else to be sure. It really is the worst part of the whole deal IMO.
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Old 07-17-2009, 04:59 PM #17
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I don't have MS , but I sure know the feeling!

I had horrible "foggy brain" in 03 & part of 04 from a combination of my repetitive work injury {RSI/TOS} and Lipitor

I really began to feel like I was getting Alzheimers and Attention deficit disorder!

luckily most of it resolved when I quit the Lipitor & got good PT & chiropractic to resolve the upper body muscles spasms & tightness.


I still can't multi task like I used to - one project at a time now LOL
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Old 07-28-2009, 07:05 AM #18
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I go at noon for the first half and I'm looking forward to this like I did finals in college. Stomach is twisted in knots. Why is it when we have to be tortured like this we always have to pay for it? I hope I don't wind up finding out I'm too impacted (how's that for a pc word) I might just regret doing this in the first place.

Well, I guess there is a problem Houston. I had the day wrong <dooh!> It's tomorrow.
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"Where's my Uranium PU36 Explosive Space Immune System Modulator?"

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Last edited by KAOheim; 07-28-2009 at 10:40 AM.
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Old 07-31-2009, 07:17 AM #19
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It was pretty rough, I'd had a hard morning at work to boot, but I think I did better than I expected to. The thing I really had issues with was memory from verbal communication. I couldn't remember much of the story after an hour at all. I did better at math than I would have ever imagined. I guess many of my issues are in my head not in my head. Hehehe.

Boy did I sleep like a baby that night though.
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Keith - dx'd 2/07
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Not a damn thing 7/09
"Where's my Uranium PU36 Explosive Space Immune System Modulator?"

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Old 07-31-2009, 10:51 PM #20
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With my MS, my DS fibromyalgia and my Moms old age and two strokes we joke that between us we have 1 brain. My DS and her husband and me and my DH have all been married enough years that we all finish sentences for each other and pretty much know what the other is thinking. But we do charades and it's fun.
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