NeuroTalk Support Groups - At the two year mark and... (a reflection and a vent)

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- - At the two year mark and... (a reflection and a vent) (https://www.neurotalk.org/multiple-sclerosis/93367-mark-reflection-vent.html)

Quote:

Originally Posted by Kitty (Post 537941)

Do you find it easier to deal with having someone there with you everyday that you can vent/cry/lean on?

Yes. Being alone and disabled is the pits. On the other hand, I don't want to have to train a new "someone" ever, so will just deal with it by myself and my kids.

gmi

Quote:

Originally Posted by SallyC (Post 537957)

We have our Kids and I think our DHs are in a better place and may be helping us more than we know..:smileypray: :)

Absolutely! :)

my DH has been a complete God send. He just sorta gets it. If it reaches a certain time, and I havent started dinner, he does. If I get the laundry started, he will fold it. If I am dragging, and unmotivated, he will con me into a walk. He has been my strength, and my rock. He goes to every appointment with me. He has read all the books. He does half my shots.

We have been married 23 years this year, and I would do the same for him if the tables were turned. Could I survive without out, well...yeah, I believe I could. I have lived on my own in the past, and it was hard work, but I did it, and did it well. I have no fear that I could take great care of me on my own, but have great comfort that I dont have to.

So, yeah, its easier with a partner. not just a mate or a date, but a partner.

I often think about the same thing Kelly. I feel so alone sometimes when thinking about the future. I just think it would help to have someone to help me make decisions.

Quote:

Originally Posted by FinLady (Post 536497)

The first year was harder as far as trying to wrap my head around this disease. Knowledge is power, and managed to grab my paws on everything to help me understand what was going on.

I was the same way......read everything I could get my hands on. And endlessly looked things up on the Internet. That's how I found NT! :)

I'm not as fanatical about it now as I was in the beginning. I just wanted to learn everything I could about it.....and that turned out to be very frustrating because no two people have the same sx with MS. It's such an individual disease.

Kitty, I call it the "designer disease" since it's unique to everyone.

Well, spine came back with no changes, which is a plus. :) Still feel like I'm going bonkers :Crazy 2:, but have decided to just keep trucking on. Gotta 'cuz I'm stubborn, and that's how I roll :D

The first year is the hardest. You want to tell everyone that you have MS:eek: You have an internal pity-party. You feel like crap because the MS is bad enough to get a diagnosis. You read everything you can get your hands on and re-read the same info on the internet. You get ticked at everyone who doesn't understand MS....and no one knows how you feel.
Those relapses can take a toll where you may never feel as good as you did before. Its okay. There will be good days and bad days. Unfortunately you have to let time go by to determine bad times of the year for your symptoms and what stresses trigger it also. You'll freak a bit when something new pops up only to find out its not progression. Its a long learning process and THANK GOD ABOVE for places to talk like this site. I've learned more here and been comforted the best. People here have given me the knowledge and forethought to ask my docs the important questions. If I had to get MS, I'm glad I got it in the age of the internet. Thank the lord for the medications on the market that help me. God bless the scientists.

I've been hanging since my 2003 diagnosis but my first signs started in 1989.
Venting is healthy.....you can vent on my shoulder anytime.:circlelove: