[Friend2U]

For that last several weeks, or months, when I get up to walk I have had my muscles from the waist down do this little ripple thing before I can get started. It is gradually getting worse. This week it is moving to my upper body as well. Today especially It is even rippling through my arms and they do uncontrollable movement until I can get started, then settle down once I'm moving.

I don't know what this means. Other than just another thing that keeps getting worse instead of better. I haven't had a 'bad' relapse for over a year. But symptoms seem to be steadily and gradually get worse. I'm afraid of moving into spms. I'm not trying to be paranoid, just a little concerned. There is always that fear of the unknown I guess.

Thanks for listening!

[Kitty]

I think I know what you're talking about. Whenever I get up...whether it's from sleeping or just from sitting in a chair....I have to stand there for a minute and sort of readjust my legs before I can start moving. It feels sort of like I need to stretch them before walking. That's about the only way I can describe it. I'm sure it comes from spasticity......it's especially bad after I've slept for a while. If I do attempt to walk to quickly without stretching out I look like I'm doing the zombie walk!

[NurseNancy]

i think you should let your dr know.
true, it's not a flare, but new or worsening sx's may warrant a check up.

please keep us updated.

you don't have to just suffer. please call for help.

[Friend2U]

Are steroids the only option for sx treatment? I've had steroids once. I'm afraid of having to use them too much. My body is just buzzing all over. Also balance is really off.
Thank you.

[Kitty]

I would venture to guess that your Neuro might suggest steroids. I'm not sure what else would help. I'd at least give him a call and let him update your records with this new sx. I hope you feel better soon.

[Friend2U]

Originally Posted by Kitty

I would venture to guess that your Neuro might suggest steroids. I'm not sure what else would help. I'd at least give him a call and let him update your records with this new sx. I hope you feel better soon.

Thank you for your responses. Last time I was at the neuro, some of this same stuff was going on. The only option he gave me was steroids. But he doesn't want to use them unless necessary. He left it up to me. It's just continued to get steadily worse. But I guess I'll hang in there for a little while.

I 'wish' we could just all have a break in this stuff every once in a while. It's like I hate to complain, so I don't to my family. Because I know how much worse it can be. But it does get discouraging to know that 'getting better' is not an option. And probably having a little break isn't an option either.

Do you like my new "Hang in there! Kitty"??? Sometimes I hate that saying... and sometimes I need it!