[Kitty]

Good article about MS related fatigue:

http://www.mscare.org/cmsc/images/pd...ucationkit.pdf


This next article is written for the medical community. Some of it's hard to understand:

http://www.mscare.org/cmsc/images/pdf/03Kinkel.pdf

[braingonebad]

Thanks! Very good stuff in that first one. (didn't read the second yet)

Thing about fatigue, at least for me, it is the worst and most debilitating thing. Yet I diminish it in my mind. It makes it impossible to work or have a social life, yet I pretend it's not happening. Then when it's not quite so bad - like now - now is when I can look back and know how bad it is when it is bad.

I don't even know how I survive those times.

[Kitty]

I know, Brain. I've had days where just getting up to use the restroom is a challenge. I can't explain it to anyone who hasn't experienced it.

[braingonebad]

Yesterday I checked and saw that I had been upright, and off the couch for 10 whole hours. That's what I meant earlier about not so bad.

That was a big day, grocery shopping and all. I'm glad I feel that good, but still miss the times when I could wall paper for 20 hours, move furniture, make dinner in between and think nothing of getting 3 hours of sleep and going to work in the morning, then doing it all again the next day. It wasn't that long ago.

Now it's like you say at times, an issue just to get to the bathroom. I've gone months at a time only eating if dh made food. Too tired to pour cereal.

[Notaclue]

I for sure have fatigue and am familiar with that but the past few days I have had "spells" if you will where I just can't keep my eyes open! They don't last long, maybe a minute or two and then I will be just fine for 20 minutes or even hours. I don't really feel it in my body per se -not heavy or weak- if that makes any sense. I have had them in the morning and at night.
I am new to MS and my neuro doc is out of town and well just hate going in if it is unrelated. I don't mind going in but don't want to run in every time there is the slightest change in my body-it is a rocky road he warned me.

Has anyone had symptoms like this? Sorry but this is all so new to me, online info is not too specific and doc said lots of variation.