You may have a condition called "Superior Canal Dehiscence Syndrome". Google it. Hearing your eyes moving when you move them (to me, it sounded like softly rubbing sandpaper on wood and I could usually only hear it when I was in a quiet room) is exclusive to only SCDS. It doesn't happen with any other condition. It is caused when there is a small hole in the temporal bone, which is the bone that separates the brain from the inner ear. It can be fixed when a neurotologist plugs the hole or resurfaces the hole with bone cement. I had this same condition and it was repaired through a middle fossa craniotoy (brain surgery). The moment I woke up from surgery, I could no longer hear my eyes moving. All my other symptoms were gone after the recovery period. There are many other symptoms of SCDS, such as tinnitus, hyperacusis (sensitivity to noise), hearing other internal sounds like your pulse in your ears, and more. There are support groups on Facebook and on the Internet where you can find support and get more information about the condition. Most doctors and some ENT's are ignorant and clueless about this disease. I had to see 6 different ENT's before I was correctly diagnosed. You have to find one (or a neurotologist) who is skilled and has experience with SCDS.

Hi, I have literally just stumbled on this thread, as I am trying to find out what the hell is going on with my body and thankfully have found you guys.

I have been having this issue since November 2015, when I started with Bell's Palsy. Since then it has gotten worse, to the point it's all day everyday. Now when I move my eyes I feel completely nauseous, constantly dizzy and headaches.

I have also had other sensations just before this started happening.
Does anyone ever feel that you can taste things you shouldn't? -I.E; I had an MRI dye scan and could taste the dye once it was injected into my blood stream. Also, when I drink anything cold I can feel it as though it is going in to my left arm instead of my stomach (if that makes any sense to anyone).

I have spoken with several Doctors/specialist consultants and they look at me like I'm a freak and change the subject.

Hello NJR85 and welcome to NeuroTalk.

This can be a side effect of having contrast injected. I have never experienced it but I did have a MRI with contrast yesterday and the tech did mention the possibility of being able to taste the contrast. Once again I did not experience this.

This could be an issue with your eyes, have you been to an Ophthalmologist or neuro ophthalmologist?

Have you had a current MRI of your brain and did it show anything?

Do you have Multiple Sclerosis?

Some contrasts I taste, some I don't... Always thankful when I don't as when I do it's like a welling of rusty tin in the back of the throat I mean it is wholly unplesant especially when you're then stuck for another 15-20 mins in the tube... It's really back if they're doing the neck too because you can't swallow to try and rid yourself of the aftertaste.

But that is one of the possibilities with the contrast dyes, along with flushing and a feeling of warmth, which I only felt once so far. Now a weird one for me that I can't quite understand is when it makes my jaw tighten... Not like it's swollen or anything, but almost like I'm starting to get lock jaw. It's the very back muscles that just clamp down.

But I will say you learn something new everyday... I thought most people could hear their own heartbeats... Is that really not the norm? I know my ears are a bit sensitive to sound, places that use the "mosquito" sound deterrent against teens will leave me sick, dizzy and even almost made me pass out once even though I was 34 and your ears should stop perceiving the frequency by 25 at the latest. Just thought I had good ears and dog whistles were broken because I could hear them whistle. And though I don't hear my eyes move, I do hear myself blinking. Now I'm going to have to go looking up what's abnormal for hearing

Hi
I am so pleased I have found this forum I thought I was going crazy. I have been to my doctor twice now with dizziness, nausea and hearing my eyes move like a 'swishing' noise in my head. Both times they have sent me away with no real explanation.
Objects also seem to change position when I'm looking at them and I'm having really strange dreams at night and can't wake myself up from them.
I'm a flight attendant and have been off work for a while with anxiety and I've just weaned myself off citalopram slowly so I noticed that some say on here it could be the cause of my symptoms?
I've also noticed that SCDS can be a cause of these symptoms which worries me when I'm due to return to long haul flying next month.
I'm wondering if I need to get a referral to an ENT consultant to get a diagnosis?
Anyone else suffering with this or who has any good advice please get in touch .
Xx v

Hi Jowilk74,

I came across this thread and your post and thought I would make myself available. I have SCDS and was diagnosed about 5 years ago but have had symptoms for about 11 years. This condition is pretty rare but there are still quite a few people that have this. One of the unique symptoms of this condition is being able to hear your eye movements 'the gritty swish sound'. I have researched this quite a bit and haven't found any other conditions that have this symptom. It would probably be good to get some follow up testing to see if you do have SCDS. Symptoms from people with this condition vary quite a bit. I would be happy to correspond more if you have questions or want more information.

Jeff (aka dizzyear)

I can hear my eyes move as well as focus. After reading the thread and comparing life events to the times it has happened, it is definitely a 'withdrawal' response for me. Never had it last more than an hour or so....until now. 5 days or so. Can barely function. Wanted to keep this thread going.

I have eye swishing. I switched from Prozac to Zoloft about 8 months ago. My swishing started around that time but it persists. I get swishing when I move my eyes to quickly. Its usually one or two swishes and maybe a slight off balance feeling. I also have some vascular issues and I am worried it might be related to that. Has anyone had these swishing sound persist?

Hi robbie919,

I haven't had this problem but I can easily believe that it's real--and annoying. The vestibular system in the ears is connected with eye movements, and maybe something goes haywire with that connection. I'm guessing here though.

You might want to run this by your primary care doctor and maybe be referred to an otolaryngologist. And it does sound as if this situation might be connected with the Zoloft you're taking. Why not ask the prescribing doctor about changing the dose or substituting a different drug?

Hi robbie919. I have the same sound as you when I move my eyes. The Kung Fu chop sound along with dizziness and other symptoms.

I was wondering, you mentioned vascular issues. Could I ask what your vascular issues are as, I hope you don't mind, but they might give me a clue.

We might also be able to help each other on this.

Thanks.