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Old 04-28-2014, 09:44 PM #31
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This thread is several years old, but interesting reading. I can see my heartbeat in my eyes sometimes. All your head orifices are connected. I got my eyeliner tattooed on and blew ink out my nose. Not much surprises me anymore.

Karilann, do you still have this happen? Has anything been done about it?
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Old 08-04-2014, 12:43 PM #32
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Quote:
Originally Posted by karilann View Post
hen the eye thing happens I will also notice a quick dulling of my hearing (everything goes into a low tone while I can hear a thumping sound) and then I get an electric shock type of feeling in my head. It all happens quite quickly, but again, not at the same time.
As the recent poster said, I know this thread is years old, but I've been withdrawing from sertraline for a week now, and the symptoms as described by Karilann are spot on. Exactly the thing that's driving me up the walls.

If I'm resting/drifting off to sleep/trying to maintain my calm, eyes closed usually but not always, and also the movement needs to be involuntary (REM-style), not intuitionally trying to make the sound happen. But these conditions met, I get the swish/crunch sound, coupled with a dulling/loss of hearing, a thump/shock in my chest (and head sometimes). Almost like the movement of my eyes has somehow triggered a momentary switch which is both PAUSE and ZAP.

Background - I've been taking Adderall, sertraline, and been on the nicotine patch pretty solid for about two years. My main purpose for this combo has been "I'm trying not to be a jackass to everyone around me" but recently I've discovered I'm still a complete tool regardless of how many meds are administered, so I stopped everything. No, this was not with the advice of my PsyD.

So I quit everything. It's been a great week, boy howdy. I discovered feels again, that was cool. My wife has been amazingly understanding and compassionate as I rediscover myself (which includes extended mopery and spontaneous outbursts of agonizing crying, but also clarity of thought and purpose tossed into the brain salad, something I've been missing). I've brought caffeine back into the mix, though not nearly as much as before, and started with a tiny bit of nicotine yesterday as well. Still leaving the prescriptions ion the shelf for now. I refuse to let the side effects of withdrawal drive me back to the bottle; if the only reason it turns out I need to take drugs is to ameliorate these side effects, then the drugs can go f**k themselves. Seriously. I'd rather do yoga.

...anyway. If anyone is still reading this thread and has similar side effects they'd like to hash out, let's talk.
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Old 11-01-2014, 04:53 AM #33
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Default Thank you so much for this thread!

I am hearing and experiencing exactly what this post about! I just want to thank you for this...I have been crying over this for a week now. A storm took the phones out and right after I switched from Zoloft to Cymbalta... Thank you so much for the answers!
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Old 11-06-2014, 12:56 AM #34
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I read an article today about some one who heard a rustling in her ear and finally went to a doctor. She uses her ear buds lot to listen to music and apparently a tiny spider had gotten into the ear bud and then transferred into her ear.
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Old 12-12-2014, 10:14 PM #35
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Quote:
Originally Posted by karilann View Post
Sometimes when I move my eyes from side to side...I hear a swish sound. I told my doc and she seemed to know what it was.....but didn't tell me anything.
Anyone else had this?
You may have a condition called "Superior Canal Dehiscence Syndrome". Google it. Hearing your eyes moving when you move them (to me, it sounded like softly rubbing sandpaper on wood and I could usually only hear it when I was in a quiet room) is exclusive to only SCDS. It doesn't happen with any other condition. It is caused when there is a small hole in the temporal bone, which is the bone that separates the brain from the inner ear. It can be fixed when a neurotologist plugs the hole or resurfaces the hole with bone cement. I had this same condition and it was repaired through a middle fossa craniotoy (brain surgery). The moment I woke up from surgery, I could no longer hear my eyes moving. All my other symptoms were gone after the recovery period. There are many other symptoms of SCDS, such as tinnitus, hyperacusis (sensitivity to noise), hearing other internal sounds like your pulse in your ears, and more. There are support groups on Facebook and on the Internet where you can find support and get more information about the condition. Most doctors and some ENT's are ignorant and clueless about this disease. I had to see 6 different ENT's before I was correctly diagnosed. You have to find one (or a neurotologist) who is skilled and has experience with SCDS.
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Old 02-10-2016, 10:29 AM #36
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I recently learned the same thing that you are saying about the disconnect in the brain stem from an amazing ent. I however have not heard any treatment for this issue.

In researching the topic of hearing your eyes move there is also a disorder of a hole in the bones near the inner ear that can cause something very similar. SCDS (Superior Canal Dehiscence Syndrome) There is a medical treatment for that.

You would need further medical diagnostics to determine if that is the cause. It is frustrating to not know what causes the dizziness and the sound and the shifting in the room.

I have the same issues with dizziness and hearing my eyes move. Do you also have sleeping disorders? I have always had insomnia and other sleep issues. I was recently diagnosed with narcolepsy. It is a disorder of the sleep cycle and the order in which it occurs . It can be a huge contributing factor although not the only one in my case .

Sorry about being so rambly in this message. Hope I offered a couple other avenues to find answers.

I just wanted to share in case you hadn't heard of SCDS, or if you do have sleep issues . Narcolepsy is known for dizziness as well as other complications that seem more logically related to not sleeping well.

Good luck! I would like to hear if you find help.

QUOTE=karilann;542238]I have since found out that its a disconnect somewhere in the brainstem that gets confused as to whether something is visual or auditory.
I do have problems there.

Also, it can be caused from withdrawl from certain anti-depressants. Withdrawl can screw up the signals in the same way.

Its really not that creepy...just weird. It doesn't go on all day long, just for a little while I will hear this light swishing sound that goes along with my eye movement. It happened most during the death of my mom so I think the stress triggered it.[/QUOTE]
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Old 08-30-2016, 08:04 AM #37
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Confused Weird eye sounds & others

Hi, I have literally just stumbled on this thread, as I am trying to find out what the hell is going on with my body and thankfully have found you guys.

I have been having this issue since November 2015, when I started with Bell's Palsy. Since then it has gotten worse, to the point it's all day everyday. Now when I move my eyes I feel completely nauseous, constantly dizzy and headaches.

I have also had other sensations just before this started happening.
Does anyone ever feel that you can taste things you shouldn't? -I.E; I had an MRI dye scan and could taste the dye once it was injected into my blood stream. Also, when I drink anything cold I can feel it as though it is going in to my left arm instead of my stomach (if that makes any sense to anyone).

I have spoken with several Doctors/specialist consultants and they look at me like I'm a freak and change the subject.
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Old 08-31-2016, 06:55 AM #38
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Hello NJR85 and welcome to NeuroTalk.

Quote:
Originally Posted by NJR85 View Post
Does anyone ever feel that you can taste things you shouldn't? -I.E; I had an MRI dye scan and could taste the dye once it was injected into my blood stream.
This can be a side effect of having contrast injected. I have never experienced it but I did have a MRI with contrast yesterday and the tech did mention the possibility of being able to taste the contrast. Once again I did not experience this.

Quote:
Now when I move my eyes I feel completely nauseous, constantly dizzy and headaches.
This could be an issue with your eyes, have you been to an Ophthalmologist or neuro ophthalmologist?

Have you had a current MRI of your brain and did it show anything?

Do you have Multiple Sclerosis?
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Old 09-06-2016, 02:31 AM #39
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Some contrasts I taste, some I don't... Always thankful when I don't as when I do it's like a welling of rusty tin in the back of the throat I mean it is wholly unplesant especially when you're then stuck for another 15-20 mins in the tube... It's really back if they're doing the neck too because you can't swallow to try and rid yourself of the aftertaste.

But that is one of the possibilities with the contrast dyes, along with flushing and a feeling of warmth, which I only felt once so far. Now a weird one for me that I can't quite understand is when it makes my jaw tighten... Not like it's swollen or anything, but almost like I'm starting to get lock jaw. It's the very back muscles that just clamp down.

But I will say you learn something new everyday... I thought most people could hear their own heartbeats... Is that really not the norm? I know my ears are a bit sensitive to sound, places that use the "mosquito" sound deterrent against teens will leave me sick, dizzy and even almost made me pass out once even though I was 34 and your ears should stop perceiving the frequency by 25 at the latest. Just thought I had good ears and dog whistles were broken because I could hear them whistle. And though I don't hear my eyes move, I do hear myself blinking. Now I'm going to have to go looking up what's abnormal for hearing
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Old 09-21-2016, 06:38 AM #40
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Smirk Worried and confused

Hi
I am so pleased I have found this forum I thought I was going crazy. I have been to my doctor twice now with dizziness, nausea and hearing my eyes move like a 'swishing' noise in my head. Both times they have sent me away with no real explanation.
Objects also seem to change position when I'm looking at them and I'm having really strange dreams at night and can't wake myself up from them.
I'm a flight attendant and have been off work for a while with anxiety and I've just weaned myself off citalopram slowly so I noticed that some say on here it could be the cause of my symptoms?
I've also noticed that SCDS can be a cause of these symptoms which worries me when I'm due to return to long haul flying next month.
I'm wondering if I need to get a referral to an ENT consultant to get a diagnosis?
Anyone else suffering with this or who has any good advice please get in touch .
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