Tapering off of neurontin does SUCK! Plus I am sure now that I did it too quckly (based on neuro's instructions). I was up to 2700 mg and the burning feeling on the top of my head returned. It has been 2 1/2 weeks without any neurontin and I still am going through withdrawl. I may try lyrica in the future, but I am going to try to survive without it for a few months first. Be careful in increasaing it to much I went from 900 mg to 2700 mg in a two year period. I just did not want to increase it again. It is a highly addictive drug.

Maybe I am still not taking enough appatently the burning has returned full speed not to mention I have had 2 falls in the past 4 days one that I land form 3 steps up onto my garage floor. My knee looks quiet lovely I miight say.

My Neuro is on vacation cant get a hold of him my normal PCP wont do anything because they dont have enough history on me I had just switched becuase my other doctor is the one who sent me to see my eye doctor the day I woke up with double vision and i was told by him it was just a problem with my eyes ya right... So now I have made a appointment with an actual ms Clinic here in the Seattle area maybe they can get me in the right direction. I swear if something doesnt work soon I will loose my mind all together Nerve pain has to be the worse thing I have ever experienced and I just want to feel better. :smileypray:

Are you kidding? Your GP should be able to prescribe Neurontin and increase your dose. It's habit forming but the abuse potential isn't there, and as far as I know neither is a street value (well, maybe for those with pain etc, but then most would be reaching for the green leafy!).

iM STARTING TO THINK THE GREEN LEAFY MIGHT BE A GOOD IDEA :)


I see people talking about how it helps so much with the pain I myself have never tried it but crap how many other meds can someone be on. Im going to ask the Ms clinic about LDN and see what they say about that it looks like alot of people have really good results with it so maybe that might be an option for me I know the Copaxone didnt work and I cant tolerate the Avonex at all theres nothing like having a 2 day hangover. they say you adjust to it well Ive been trying for a year now and still havent adjusted so that is now out the door also. Tysabri cant afford the portion I would have to pay, so thats not a option. Maybe I can get on a trial med they do that at the clinic I will be going to so maybe I can get involved in one of them and not have to pay for all of this stuff I havent worked since last July and money is running very thin in this household.