advertisement
Reply
 
Thread Tools Display Modes
Old 08-01-2009, 08:04 PM #1
rossy rossy is offline
Junior Member
 
Join Date: Aug 2009
Location: houston
Posts: 7
10 yr Member
rossy rossy is offline
Junior Member
 
Join Date: Aug 2009
Location: houston
Posts: 7
10 yr Member
Default Nobody knows...

Trying to self-diagnose. No luck with doctors yet. All of them just tell me my symptoms are stress related but I don't believe it. Symptoms: headaches, confusion, blurred vision, ringing in ears, twitches in R eye, L hand and L foot, nausea, dizziness, speech difficulties (i.e. forgetting words, mumbling, stuttering), fatigue, difficulty falling asleep, staying asleep, and waking too early. I also have joint pain, cramps in abdomin, back, feet and hands, and my newest symption - bowel incontinence. Has anyone had similar symptoms? Could these be symptoms of MS?
rossy is offline   Reply With QuoteReply With Quote

advertisement
Old 08-01-2009, 08:53 PM #2
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Hi Rossy..Welcome. So sorry as to why you are here, but glad you found us.

To answer your question, Yes, but it could be other things too. Do You have a Neuro? Has he/she done any tests, such as MRI, LP...etc?

An MS Diagnosis can sometimes come as a process of elimination of other possible illnesses.

Glad you are here..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
Old 08-01-2009, 09:11 PM #3
rossy rossy is offline
Junior Member
 
Join Date: Aug 2009
Location: houston
Posts: 7
10 yr Member
rossy rossy is offline
Junior Member
 
Join Date: Aug 2009
Location: houston
Posts: 7
10 yr Member
Default

Quote:
Originally Posted by SallyC View Post
Hi Rossy..Welcome. So sorry as to why you are here, but glad you found us.

To answer your question, Yes, but it could be other things too. Do You have a Neuro? Has he/she done any tests, such as MRI, LP...etc?

An MS Diagnosis can sometimes come as a process of elimination of other possible illnesses.

Glad you are here..
Saw neuro last Tues. Sched for MRI & EEG 8/11, but he told me it was most likely stress.
rossy is offline   Reply With QuoteReply With Quote
Old 08-01-2009, 09:58 PM #4
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Quote:
Originally Posted by rossy View Post
Saw neuro last Tues. Sched for MRI & EEG 8/11, but he told me it was most likely stress.
GRRRRRR!!! I hate it when they assume, before testing..It's enough to cause a person stress..

Good luck with the tests..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Twinkletoes (08-01-2009)
Old 08-01-2009, 10:15 PM #5
Twinkletoes's Avatar
Twinkletoes Twinkletoes is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Beautiful central Utah
Posts: 4,611
15 yr Member
Twinkletoes Twinkletoes is offline
Grand Magnate
Twinkletoes's Avatar
 
Join Date: Jan 2008
Location: Beautiful central Utah
Posts: 4,611
15 yr Member
Default

I hope the tests give you some answers, Rossy. Good luck!
__________________
Rochelle
.



.


I've lost my mind ... and I don't miss it!


LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF!
Twinkletoes is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (08-02-2009)
Old 08-01-2009, 10:48 PM #6
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default

hi rossy,

welcome to NT.
good luck with your tests. i hope they give you some answers.
don't give up looking. why do drs assume "stress" when they deal with females?

if you need to consider getting a 2nd opinion. and, get copies of your test results and start a medical file on yourself.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
braingonebad (08-03-2009), SallyC (08-02-2009)
Old 08-02-2009, 12:47 AM #7
Freesia38's Avatar
Freesia38 Freesia38 is offline
Member
 
Join Date: Jul 2009
Location: Australia
Posts: 108
10 yr Member
Freesia38 Freesia38 is offline
Member
Freesia38's Avatar
 
Join Date: Jul 2009
Location: Australia
Posts: 108
10 yr Member
Default

Hi Rossy,

I'm new here too, and have MS-like symptoms, but without a diagnosis.
It is a process of elimination, which i'm going through too.

You''ll need lots of tests to rule out or affirm many other conditions and diseases.
The MRI may or may not show anything, but you're on the right track.

Blurred vison is not stress!
I think some Dr's use the excuse of 'stress' to fall back on when they don't know what's wrong.
It's very poor that your neuro blamed it on stress even before tests have been done.
Depending on what it is you may not get a quick diagnosis. You need to be patient in the world of neurological problems!

Best wishes with it all.
Freesia38 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (08-02-2009)
Old 08-02-2009, 08:53 AM #8
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

hello, and welcome.

While stress can cause such symptoms, you normally just know it when something is wrong with you. you can feel it! That being said, there are more than 100 diseases that can mimic MS. Lyme, Lupus, Sjoghrens, and so on. The list could go on and on.

What I found helpful was to get to an MS clinic. there are usually at least one in every state. Sometimes its a branch of a main hospital, but most states have at least one. Those folks will do the leg work. They will test for Vit b12 def. Check your Vit D level (commonly low in MS) check your Lyme titers, and your inflammtory markers. They will do hands on exam, and if all of those things lead them to believe they need to be searching for MS, they most commonly do a spinal tap, and an MRI with Gadolinium dye. If you have lesions in your brain, the dye will light up the active ones. not all brain lesions are MS. They commonly lay in a pattern around the ventricle, but can be found in other locations. The spinal tap will measure inflammatory markers and O bands. Most folks wont have O bands unless they are IN a flair, so dont be discouraged if its a zero count.

PLEASE see an eye surgeon. They will take a look at the front edge of that optic nerve in your eyes, and maybe able to tell if you have a disease called optic neuritis. its a hallmark sign of MS and quite frequently is the presenting symptom of MS. They can only see the front tip of this thing, and the MRI would be able to see the rest.

Please know that being tested for and being diagnosed with MS is a long process for most folks. Many go through several MDs before finding one that will listen to them. In 99% of all MS cases, they are not an emergency. While it feels like your life is falling apart, and you cant get a grip, its RARE, extremely rare to have a lesion on your brain stem, and that would be the only time you will see those who diagnose you panic.

Please go to NMSS.org. They have amazing resources, and can help you find an MD in your area that treats and can help diagnose or rule out MS. Its a process of elimination. They take this basket of 100 things and start to pull them out. She doesnt have B12 cause her blood test was great, ok, next, she doesnt have Lyme cause her blood test was good, ok, next, she doesnt have high inflammatory markers her CRP was good...get the idea? Then they will narrow it down to a hand ful of 10 and out of those ten, they tend to take their best educated guess based on your history, and your work up. it can be quite frustrating and aggrevating, but dont allow yourself to be dismissed if you feel something is wrong. Go get those answers. I wish there was a blood test that could make it easy.

I have always said I want a color coded system of eyebrows. This girl has a red eyebrow so she has heart disease. This one pink, she has breast cancer, this one is orange so she has MS. wouldnt that be great?! Hang in there, and come on back to sit and chat, and learn, and get hugs.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
braingonebad (08-03-2009), SallyC (08-02-2009)
Old 08-02-2009, 07:36 PM #9
BBS1951 BBS1951 is offline
Member
 
Join Date: Sep 2006
Posts: 474
15 yr Member
BBS1951 BBS1951 is offline
Member
 
Join Date: Sep 2006
Posts: 474
15 yr Member
Default

Run away if a doctor tells you it's stress. He is full of himself and lacks knowledge and imagination. Be sure you have your life insurance and long term disability insurance lined up bfore you start looking for a diagnosis.
__________________
I cannot control my illness, But I can control my wellness.
BBS1951 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (08-03-2009), dmplaura (08-05-2009), SallyC (08-02-2009)
Old 08-03-2009, 06:34 AM #10
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default

BBS1951 is correct. Pre-diagnosis is time to get life insurance and Long term Disability. After diagnosis is TOOOOO late. SSDI is not much if you're used to more. I was DXed within 5 years of my last job, My SSDI a nice addition to DH's income, but Iwould find it hard to live on just it. My diagnosis made us think hard how bad things just happen in this world, it costs and life is very costly, we got STD and Life Insurance ASAP for DH as he is the real wage earner in our house and we have 2 kids about to start college In 5 years when we can cancel LTM, that extra money monthly will be nice, as it is "found" (not used to having it), should save it if we don't keep policy. DX can be a long process. Best of luck.
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 03:23 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.