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Old 08-17-2009, 05:27 PM #121
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BBS yes YOGA is wonderful!! Just wish I would be better at incorporating it more into my days

Wiz, thanks so much!!yes 40 hours on feet at work, five kids, and I am always worn out... thanks...

My vertigo days I had to stay in bed, as if lifted head it would be spin too too much.. and vomitting... uggg but other days once better the golf came in...

but today I am realizing that once I golf and work both, the next few days the back is spasming more... uggggg oh well life is full of pain at times, just tired of it sometimes...

this week I gave myself three days off yeahhhhhhhhh
although this is not happening often though.. as some here know hubby lost his job due to the casino shutting his department down...

hugss all and KEEP MOVING< now you got me thinking yoga video tonight in a bit... it might help my back tonight hugsss,sarah
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Old 08-17-2009, 07:01 PM #122
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Default I need help!

Ok so here's the deal---

I want to get moving, I read what some of you all are doing and I'm jealous!

I am only 25 years old but insanely out of shape.

Problem is, after my two leg (transverse myelitis) attacks, every time I walk even the slightest bit vigorously, I get tingling in my butt, sometimes legs and feet too. I'm not sure how much I should just push through it... and swimming is not an option for me right now unfortunately--that would be heavenly!

Any ideas or suggestions? Before I knew I had MS I was doing PT and all kinds of stuff through the numbness, I was just forcing myself to move. But now that I know what I have, I'm scared of provoking a relapse.
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Old 08-17-2009, 08:08 PM #123
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If you can walk, without walking vigorously, that would be a great start.

Also, if you can only sit, then start by vigorously moving your arms in an attempt to elevate your heart rate.

Whatever you choose to do, start out slowly.

Remember, these relapses when you exercise are not real relapses: They are pseudo flares. Once the body settles down, you are back to your regular baseline.

What makes swimming impossible?

Some people just hang out on the steps and move in the water on the steps. The water keeps the body cool so that you dont overheat.

Otherwise, like I said, just start out small with say, a five minute easy going walk. Each day add a minute until you are walking 45 minutes a day. Dont worry about speed. Even walking slowly is good for you. Just get moving. Only you can do this. In the long run it will benefit you more than any pill can! And be sure you are eating healthy as well!

Tell us how it goes each day. And welcome to our Club-- you are our newest member.

Poetic, I am a 58 year old woman. In 2004 I could barely walk across the room I was so out of shape. Now I swim a mile every day. I lift weights. I go up and down from my roof carrying plants (its a four story house) in the heat. If I can get in shape, anyone can!!!
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Old 08-17-2009, 08:35 PM #124
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Quote:
Originally Posted by poetic license View Post
Ok so here's the deal---

I want to get moving, I read what some of you all are doing and I'm jealous!

I am only 25 years old but insanely out of shape.

Problem is, after my two leg (transverse myelitis) attacks, every time I walk even the slightest bit vigorously, I get tingling in my butt, sometimes legs and feet too. I'm not sure how much I should just push through it... and swimming is not an option for me right now unfortunately--that would be heavenly!

Any ideas or suggestions? Before I knew I had MS I was doing PT and all kinds of stuff through the numbness, I was just forcing myself to move. But now that I know what I have, I'm scared of provoking a relapse.
Tingling and numbness are sensory symptoms - abnormal sensations that are very normal if you have MS.

These sensations can increase, for some, during exercise but once you relax and cool down the sensations will also calm down.

You are not hurting yourself or the MS. Quite honestly, if I didn't exercise because of sensations, in my case those sensations are buzzing/vibrations from the waist down, I would never do anything.

I was 24 when I was diagnosed (I'm 48 now), my neuro told me the best thing I could do is walk, this disease likes to effect my legs ( I have numerous cervical spine lesions).

I thought he was out of his flippin' mind, I was having my first exacerbation which was quite severe and could barely get around my home let alone go for a walk.

I did take his advice, I started to try and walk. At first it was just down the drive way and back. I would come back exhausted, weak and my legs would be vibrating/buzzing. All I could do was cry. Then after awhile I would do it all over again and cry ( if I haven't mentioned it, I did alot of crying in those early years). I found the process to be frustrating, tiring, and I would get angry at my legs.

I have gone through this same process 5 different times due to exacerbations. Each time I get angry and frustrated but I keep going anyway while I lovingly curse my neuro under my breath.

Because this disease likes to effect my legs and mobility I truely believe had I not kept trying and still try I would have been using a wheelchair/scooter very early on in my diagnosis.

It's important to rest and cool down after exercise. Taking a cool shower after your exercise will decrease your core body temp quicker and allow you to feel better quicker after working out. I also use a fan when I use my Elliptical or PT exercises to keep my core body temp down.

If this thread will motivate even one person to start exercising or seek the advice of a Physical Therapist (PT) it's worth the effort to keep posting and to keep this type of thread going.
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Old 08-17-2009, 09:23 PM #125
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Checking in:

Friday, no exercise, we were traveling most of the day to see our niece and her family.

Saturday, wow. We shopped for nearly 7 hours, then came back to her house to eat dinner. After that I played with her 35 lb puppy, even rocked and sang to him. I tossed the football for about 20 minutes or so with my nine year old great-nephew, then went for a 15 minute power walk with my niece.

Sunday my hands ached from catching the Nerf football, today, I ached all over but it was a good ache, from exercise.

I couldn't keep my eyes open today and had to take a nap. I was toast, lol. I'll go to bed early tonight and get back to my new exercise routine in the morning.
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Old 08-18-2009, 09:31 AM #126
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Well, my weekend exercise consisted of working on dbf's kitchen. The walls are stripped (peeled the paint off - literally came off in big pieces.), we did that a while ago. So Friday, I patched any holes, rough spots, etc. I did lots of careful up and down on the stool thing he has and overhead reaches. That was a lot of stretching! I think that counts as exercise.

Saturday I weeded the 2 small garden beds in preparation for fall vegetable planting. I didn't quite get them done as it got too hot.

Took 2 days off (Sunday and Monday) from exercising except my stretches.

Took a small walk today - 5 minutes was all my legs wanted to do this morning.
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Old 08-18-2009, 09:40 AM #127
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Quote:
Originally Posted by poetic license View Post
Ok so here's the deal---

I want to get moving, I read what some of you all are doing and I'm jealous!

I am only 25 years old but insanely out of shape.

Problem is, after my two leg (transverse myelitis) attacks, every time I walk even the slightest bit vigorously, I get tingling in my butt, sometimes legs and feet too. I'm not sure how much I should just push through it... and swimming is not an option for me right now unfortunately--that would be heavenly!

Any ideas or suggestions? Before I knew I had MS I was doing PT and all kinds of stuff through the numbness, I was just forcing myself to move. But now that I know what I have, I'm scared of provoking a relapse.
Start out small. Maybe take a 2 minute walk and do that for a few days and slowly increase it by 1 minute every few days.

There are many things that you can do to make it more like exercise. I call it creative exercise.

During the summer months I exercise far less and am less active. It is too hot out and the pool becomes warmer than bath water. I fill my tub up with water and do exercises in the tub. I do scissors, kicking, and leg lifts.

Additionally, I make housework more of an exercise routine by using controlled movements and paying careful attention to my core and posture. Things like vacuuming without bending forward, engaging my stomach muscles, and working my upper arms while vacuuming. I do the same with mopping the floor - slow, controlled movements.

You can do it! We are all here to help you and support you.
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Old 08-18-2009, 11:06 AM #128
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Moooooooooooving verrrrrrrrrrry sloooooooooow,todaaaaaaaaaay. Humidity wins again..
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Old 08-18-2009, 11:41 AM #129
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Finally set up a "no excuses" zone around me a few weeks ago. Need to be under 300 pounds for the hip replacement and this October will be the 4 year mark of The Wreck that put me in this wheelchair (or using a cane).

Me and my boys get out for a few hours daily, as I noticed they are getting a bit 'pudgey' and I was practically a shut-in for awhile. There's a ton of junk in the yard to keep us busy organizing, cleaning, raking and burning. Chipping away at it a little a day.
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Old 08-18-2009, 12:47 PM #130
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Always nice to see you're still "moving" around, moosey baby..
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