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Old 08-08-2009, 12:46 PM #1
slskckjebw slskckjebw is offline
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Default appointment note from new MS doc

Cranial nerrves 11-x11 were intact except for slight temporal pallor.

There was no Marcus Gunn pupil.

Motor did not show pronator drift, suboptimal effort for testing upper extremity strength was 4/5.

Legs were 3/5 in sitting position.

Patient had bilateral AFO.

There was no atrophy, fasciculation, or involuntary movement.

Muscle strentch reflexes were 2/4 in upper extremities, 3/4 in lower extremities.

There was no Hoffmas sign.

Plantars were extensor bilaterally. (Babinski's sign?? is that what he is saying I have?)

Crebellar did not show dymetria, in tention tremor.

alternationg movements were done slowly. ( I can't move quickly any more)

Romberg sign with eyes open was present, worsens with eye closed. (can't stand unassisted with eyes open for more than 15 seconds) stinks............

Patient coud not do toe or heel walking. (not even close)

Gait was slow, slightly wide based. (like I have a wet diaper...)

Sensory showed pin ***** was decreased on the entire right side including the face. (did not hurt on right side at all)

It was intact on the left side. (ouch!)

Vibration was dereased in the right side compared to the left.

There was no level on the trunk. (not sure what this means)

Pin ***** however on the right posterior aspect of the chest and abdomen was nearly normal to the left side.

Impression RRMS (which I already had that dx).

Wish they would put this in laymans terms!! This is the appointment notes from my new MS doctor. I have an MRI coming up here in September. My worst issue with now is my vision and walking.

Is this typical? good, bad, inbetween for RRMS???
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Optic neuritis May 2007 and again January2008
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July 2009 started Betaseron.....

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Old 08-08-2009, 01:12 PM #2
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Sounds pretty typical for MS....don't know what he was basing the RRMS, though. Ask the nurse to translate for you...LOL
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slskckjebw (08-09-2009)
Old 08-08-2009, 01:16 PM #3
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Originally Posted by SallyC View Post
Sounds pretty typical for MS....don't know what he was basing the RRMS, though. Ask the nurse to translate for you...LOL
That was not the whole letter of history. Do you think MS is the wrong dx? I have had ON twice, trigeminal nerualgia................

I am wondering if I hav eBabinski signs............
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Optic neuritis May 2007 and again January2008
Diagnosed February 13 2008
Started Avonex February 22 2008 (still progressing)
July 2009 started Betaseron.....

"Don't argue with an idiot. People watching may not be able to tell the difference."
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Old 08-08-2009, 02:13 PM #4
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Quote:
Originally Posted by slskckjebw View Post
That was not the whole letter of history. Do you think MS is the wrong dx? I have had ON twice, trigeminal nerualgia................

I am wondering if I hav eBabinski signs............
I had to look it up, I'm a little brain foggy today (insomnia sucks) but I think that you probably do have it. Follow the link and read what it says about "extensor".

http://en.wikipedia.org/wiki/Plantar_reflex
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Old 08-08-2009, 05:24 PM #5
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Wow, ok. I wish these doctor notes came with decoders! Or a medical dictionary!

It does look like I have it. Wish the doctor would have said something. I am going to ask!

I am sorry you have insomnia. I have the opposite. I CAN sleep and sleep and sleep........................ Neither problem is good

LA

Quote:
Originally Posted by Erin524 View Post
I had to look it up, I'm a little brain foggy today (insomnia sucks) but I think that you probably do have it. Follow the link and read what it says about "extensor".

http://en.wikipedia.org/wiki/Plantar_reflex
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Optic neuritis May 2007 and again January2008
Diagnosed February 13 2008
Started Avonex February 22 2008 (still progressing)
July 2009 started Betaseron.....

"Don't argue with an idiot. People watching may not be able to tell the difference."
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Old 08-09-2009, 03:04 PM #6
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Originally Posted by slskckjebw View Post
Wow, ok. I wish these doctor notes came with decoders! Or a medical dictionary!

It does look like I have it. Wish the doctor would have said something. I am going to ask!

I am sorry you have insomnia. I have the opposite. I CAN sleep and sleep and sleep........................ Neither problem is good

LA
I took classes for Medical Transcription, and I got an A in Medical Terminology (havent finished the transcription classes tho...and everytime I want to go back, the MS acts up again) I still have my Medical Dictionary tho, and the internet is a good place to look things up if you know what to type into Google.

I got curious, so I went back and checked my medical records that I have from the year I was diagnosed. (scanned them onto a disc) and looked to see if I had a positive Babinski then. I was surprised that I didnt. I looked at the few records that I've collected since then, and one of my neurology records from last year says that I do now have a positive babinski.

I wonder if that goes away?

On the insomnia, I attempted to go to bed earlier than I have been last night. (330am) and didnt fall asleep till 430am. That sucked. Mostly because I had a migraine at the same time (which hasnt gone away yet! argh!)

I guess this is what I get for wanting my vision back and not doubled anymore. (I had IVSM last month for double vision) So, I guess it was an ok trade. I'm not walking into walls anymore.
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Old 08-09-2009, 12:49 PM #7
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You could ask your MS doc to translate a few things that you are confused about. Even with a medical dictionary, you won't be able to understand your own test results.

I take Klonopin at bedtime, which gives me 7-8 hours of wonderful sleep. I also have MS tremors, and take Klonopin twice a day (morning and afternoon) to help with them.

Good luck with your MRI, and please keep us posted.

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