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Old 08-25-2009, 02:53 AM #11
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Originally Posted by Lady View Post
tkrik is correct, IMO.
Thyroid and perhaps a herniated disc in the back.



Did you know that you can't take Coenzyme Q10 and many listed herbs while on Thyroid medication? I have a Hashimoto's Thyroid Dx also.

I used a blue color to identify some of my thoughts since I am Thyroid meds too. It is an auto-immune disease. Your body is attacking your Thyroid.

You should be seen by and Endocrinologist to check your Pituitary and Hypothalamus gland also. An Eye specialist and a Orthopedist for your back and numbness. Just my thoughts on your questions.

As for MS? You have to "wait and see" a while longer, or see a MS specialist for the correct tests.


Yes Thyroid.

Also IGF-1 deficiency which could be GH deficiency which could also be causing these problems.

I am getting tingling on the top of my head and down my arms and legs which is most likely poor circulation due to thyroid or igf-1/GH which a deficiency of can cause a loss of myelin.

I am waiting for my new hormonal blood tests they are taking another 2 weeks.

What do you mean you cannot take herbs or supplements if you have hashimoto's, what is your reasoning for this?

Thyroid medications suppress TSH and the immune system attacking your thyroid to some degree.

For example selenium 100-200mcg a day is useful to reduce hashimoto's antibodies.

CQ10 and others are just vitamins/minerals etc everybody needs.


I got my spinal x-ray back:

Conclusion:
- Sigmoid scoliosis of the thoracolumbar spine with mild convexity to the right at the thoracic level and mild convexity to the left at the thoracolumbar level.

- Mild anterior wedging of four consecutive thoracic vertebrae, mainly the lower thoracic vertebra, may represent changes of scheuermann's disease.

- Their is also bilateral L5 pars defect resulting in grade 2 anterolisthesis on L5 on S1, with no significant degenerative change seen of the thoracic or lumbar spine.
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Old 09-04-2009, 01:49 PM #12
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Originally Posted by MetalMX View Post
I am a 20 year old male. I have been having these symptoms for about a year, in march they suddenly got better/improved then they got worse again.

- Seeing flashing spots in front of eyes when blinking sometimes
- seeing floaters or what looks like worms in the vision running around at times
- chronic fatigue/ feeling of generalised weakness
- sometimes air hunger/feeling breathless for no reason
- poor appetite
- muscle weakness
- reduction in the sense of touch
- tingling/pins and needles all over the arms, legs, head, and other parts of the body
- poor short term memory/difficulty remembering
- cold hands
- heart rate feels like its sometimes alternating fast with slow
- pulsing sensation in the neck and in the stomach
- hard to exercise/tolerance to exercise diminishing where as before i was able to exercise easily.
- mood alternating with good to suddenly feel suicidal
- sometimes feeling like i cannot speak (although this has been not very frequent)
- bowel movements all over the place


I have hashimoto's thyroiditis and am being treated with armour thyroid.

Am wondering if these symptoms are consistent with MS?

Im about to do EMG and nerve conduction studies with my neurologist also. My regular blood work has also always been generally normal.

I did a CT scan of the brain which showed posterior cortical atrophy abnormal for a patient of my age. Rest of the brain appeared normal.

I also have a moderate thoracic kyphosis. I sometimes when i lie on my back get numbness in a leg and a whole leg can go numb and feel very weird tingly for a minute and then it goes away. I was getting a massage the other day and when the masseur was massaging along my spine they pressed a bit harder with their elbow and i had really bad tingling down both my arms and legs, after i felt a bit disorientated/weird.

Also i have low IGF-1 levels 19 (24 - 102) nmol/L

It appears this itself (GH deficiency) can cause these symptoms... which GH could relieve.

So i am trying to figure out if this is being caused by MS or IGF-1 deficiency.
Hi MetalMx,

Sorry if I missed this, but have you been tested for a B12 deficiency?

I was dx'd with B12 deficiency about ten years after my Hashimoto's dx. Many of the symptoms I had were very similar to what you describe. I'm happy to say that fixing my B12 deficiency resolved my symptoms. Be sure this is checked, and also request a copy of the lab result and be sure you are in the upper range. Lab lows are typically set around 150, but neurological damage can occur in patients with levels as high as 400 or more. My B12 level was 294(150-1100)... AFTER 3-5 years of progressive symptoms.

Here is a list of the symptoms I had and more info on B12 deficiency.
http://jccglutenfree.googlepages.com...ciencysymptoms
http://jccglutenfree.googlepages.com/b12deficiency

Gluten sensitivity/celiac disease can also cause symptoms that mimic MS, through both immunological means and through vitamin deficiency.

Cara
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Old 09-04-2009, 04:53 PM #13
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Hi Cara,
Excellent idea. I had B-12 deficiency after the birth of my third child. I had weekly shots. I don't know the b-12 count, it was a long time ago. I had 6 pregnancies. The shots continued for a long time, then went monthly.

He then he put me on oral b-12. I have taken that for eons, still do. I take 1 gram a day and my tests show around 980 now. High, but normal.

I couldn't get off of the couch after my third child. I was glad the GYN was knowledgeable to these conditions. I had low Thyroid back then too but was taken off the med after 10 years, by a doctor who said my Thyroid tests are fine. Yes they were fine because I was on the Thyroid med. Duh!

Now with a goiter and many nodules later, I tested hypothyroid with a new doctor.

The Pharmacist and Endo doctor, told me what to take and not to take with the med. Gave me a list. No food one hour, no iron or antacid tablets for four hours and many other no-no's that do not agree with the Thyroid meds. Birth control and HRT affect it too. I didn't have that knowledge when I took it years ago. Hmm
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Old 09-10-2009, 07:52 AM #14
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I might have had a B12 deficiency but i was using sublingual methylcobalamin 5mg so this helped with certain b12 symptoms i had.

I have been seen by a neurologist and he has done EMG and nerve conduction studies and apparently something is wrong with my nerves, their is some damage their. He notes to the peripheral nerves.

We don't know what is going on yet but he sent me to do a Brain MRI, Spinal MRI, and blood tests. He also wanted to exclude MS from these tests.

One question i have is it always necessary to be injected with MRI contrast when doing brain or spinal MRI's? can these tests be performed without these dyes?

I did a pituitary MRI last year and was injected with a contrast containing gadolinium this also made me break out in hives. I did a hair analysis (to check my mercury levels) and my gadolinium is now elevated so i don't need any extra heavy metals added to this and i refuse to be injected with radioactive dyes of any kind. Gadolinium is a rare earth metal it is never meant to be injected into a human being
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Old 09-10-2009, 10:02 AM #15
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I did a pituitary MRI last year and was injected with a contrast containing gadolinium this also made me break out in hives. I did a hair analysis (to check my mercury levels) and my gadolinium is now elevated so i don't need any extra heavy metals added to this and i refuse to be injected with radioactive dyes of any kind. Gadolinium is a rare earth metal it is never meant to be injected into a human being
If you had a reaction to the contrast before they will NOT give it to you. Be sure to let them know of your previous reaction prior to your MRI. Let your prescribing dr know as well as they will put on the order that the MRI is to be done without contrast.

Let us know how it all goes. Wishing you luck.
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Old 09-13-2009, 09:50 AM #16
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If you had a reaction to the contrast before they will NOT give it to you. Be sure to let them know of your previous reaction prior to your MRI. Let your prescribing dr know as well as they will put on the order that the MRI is to be done without contrast.

Let us know how it all goes. Wishing you luck.

Thanks so much

if someone wants to chat pm me.
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Old 09-13-2009, 06:54 PM #17
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Originally Posted by MetalMX View Post
I might have had a B12 deficiency but i was using sublingual methylcobalamin 5mg so this helped with certain b12 symptoms i had.

I have been seen by a neurologist and he has done EMG and nerve conduction studies and apparently something is wrong with my nerves, their is some damage their. He notes to the peripheral nerves.

We don't know what is going on yet but he sent me to do a Brain MRI, Spinal MRI, and blood tests. He also wanted to exclude MS from these tests.
Hopefully the testing will be more definitive, but never stop taking the B12... even after your level has come up. You need to keep it in the upper quartile of range forever. I've known several people whose doctor gave them B12 only long enough to bring them up to a moderate range, and then dropped treatment... with more damage to follow later. . Good to know you are taking oral methylcobalamin!

B12 deficiency does cause peripheral nerve damage as well degeneration of the spinal column. And when that degree of damage is done, it can take months to years to repair. You may improve more yet, given more time. You may have other co-existing disease, so good for extra testing to rule other things out, but don't underestimate the damage the B12 deficiency alone can do.

Subacute combined degeneration: clinical, electrophysiological, and magnetic resonance imaging findings JNNP

Quote:
Also:
From: The Neurological Manifestations of Gastrointestinal Disease by Mark Skeen, MD.
Neurologic Clinics
Volume 20 € Number 1 € February 2002

"The most common manifestations are paresthesias, ataxia, memory loss, and extremity weakness.[88] Cerebral symptoms are reported frequently and on occasion they are the only manifestation.[88] Subacute combined degeneration of the spinal cord occurs, with degeneration of dorsal columns and corticospinal tracts. In many patients, peripheral neuropathy accompanies spinal cord manifestations, and paresthesias and loss of vibratory sensation may result from either or both pathologic processes. Although it is frequently difficult to distinguish which site of pathology is primarily responsible for distal sensory changes, some studies have demonstrated the existence of mixed axonal and demyelinating sensorimotor neuropathies.[41]
[104] "


"Subacute combined degeneration has also been reported in a patient with a high serum vitamin B12 level and an abnormal plasma vitamin B12 -binding protein.[130] Serum methylmalonic acid and homocysteine levels rise as a marker of tissue deficiency of cobalamin and decline in response to therapy.[81] [89] [106] Although serum methylmalonic acid level appears to be the most sensitive single test for tissue deficiency, further sensitivity results from the determination of both metabolites.[81] [89] [106] In addition, the demonstration of falling metabolite levels after therapy adds diagnostic certainty in atypical cases.[89

Good luck on all the follow up tests!
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Old 09-21-2009, 03:21 AM #18
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I had alot of those same symptoms when i was dx with ms but they did a spinal tap and an MRI to determin that i did have ms so just keep going to your doctor and maybe ask about an MRI. BC the spinal tap i had done was neg for ms but the MRI showed that i did have it. Just keep talking to your DR and i found doing research helps alot.
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Old 09-23-2009, 05:06 AM #19
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hey metalmx.

are you any closer to an answer? had your mri's ?

can I have my garden back too please. i think it blew in from SA to you today.
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Old 05-15-2015, 08:15 PM #20
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Default Helminth therapy - did you try?

I have been on helminth therapy for about 8 months or so - have had 3 doses so far - one more planed in a couple of months. I take it do lupus/sjogrens. I friend of mine with Hashimotos is considering it. Not sure if this was a confirmed diagnosis for you, but seemed to be indicated? Can you provide a further update about how it has gone for you in the longer term? The one year on update sounded very promising.
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