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#11 | |||
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Junior Member
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Yes Thyroid. Also IGF-1 deficiency which could be GH deficiency which could also be causing these problems. I am getting tingling on the top of my head and down my arms and legs which is most likely poor circulation due to thyroid or igf-1/GH which a deficiency of can cause a loss of myelin. I am waiting for my new hormonal blood tests they are taking another 2 weeks. What do you mean you cannot take herbs or supplements if you have hashimoto's, what is your reasoning for this? Thyroid medications suppress TSH and the immune system attacking your thyroid to some degree. For example selenium 100-200mcg a day is useful to reduce hashimoto's antibodies. CQ10 and others are just vitamins/minerals etc everybody needs. I got my spinal x-ray back: Conclusion: - Sigmoid scoliosis of the thoracolumbar spine with mild convexity to the right at the thoracic level and mild convexity to the left at the thoracolumbar level. - Mild anterior wedging of four consecutive thoracic vertebrae, mainly the lower thoracic vertebra, may represent changes of scheuermann's disease. - Their is also bilateral L5 pars defect resulting in grade 2 anterolisthesis on L5 on S1, with no significant degenerative change seen of the thoracic or lumbar spine. |
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"Thanks for this!" says: | Lady (09-04-2009) |
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#12 | ||
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Senior Member (jccglutenfree)
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Sorry if I missed this, but have you been tested for a B12 deficiency? I was dx'd with B12 deficiency about ten years after my Hashimoto's dx. Many of the symptoms I had were very similar to what you describe. I'm happy to say that fixing my B12 deficiency resolved my symptoms. Be sure this is checked, and also request a copy of the lab result and be sure you are in the upper range. Lab lows are typically set around 150, but neurological damage can occur in patients with levels as high as 400 or more. My B12 level was 294(150-1100)... AFTER 3-5 years of progressive symptoms. Here is a list of the symptoms I had and more info on B12 deficiency. http://jccglutenfree.googlepages.com...ciencysymptoms http://jccglutenfree.googlepages.com/b12deficiency Gluten sensitivity/celiac disease can also cause symptoms that mimic MS, through both immunological means and through vitamin deficiency. Cara
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"Thanks for this!" says: | Lady (09-04-2009) |
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#13 | |||
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Senior Member
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Hi Cara,
Excellent idea. I had B-12 deficiency after the birth of my third child. I had weekly shots. I don't know the b-12 count, it was a long time ago. I had 6 pregnancies. ![]() He then he put me on oral b-12. I have taken that for eons, still do. I take 1 gram a day and my tests show around 980 now. High, but normal. I couldn't get off of the couch after my third child. I was glad the GYN was knowledgeable to these conditions. I had low Thyroid back then too but was taken off the med after 10 years, by a doctor who said my Thyroid tests are fine. Yes they were fine because I was on the Thyroid med. Duh! Now with a goiter and many nodules later, I tested hypothyroid with a new doctor. The Pharmacist and Endo doctor, told me what to take and not to take with the med. Gave me a list. No food one hour, no iron or antacid tablets for four hours and many other no-no's that do not agree with the Thyroid meds. Birth control and HRT affect it too. I didn't have that knowledge when I took it years ago. Hmm
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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"Thanks for this!" says: | jccgf (09-13-2009) |
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#14 | |||
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Junior Member
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I might have had a B12 deficiency but i was using sublingual methylcobalamin 5mg so this helped with certain b12 symptoms i had.
I have been seen by a neurologist and he has done EMG and nerve conduction studies and apparently something is wrong with my nerves, their is some damage their. He notes to the peripheral nerves. We don't know what is going on yet but he sent me to do a Brain MRI, Spinal MRI, and blood tests. He also wanted to exclude MS from these tests. One question i have is it always necessary to be injected with MRI contrast when doing brain or spinal MRI's? can these tests be performed without these dyes? I did a pituitary MRI last year and was injected with a contrast containing gadolinium this also made me break out in hives. I did a hair analysis (to check my mercury levels) and my gadolinium is now elevated so i don't need any extra heavy metals added to this and i refuse to be injected with radioactive dyes of any kind. Gadolinium is a rare earth metal it is never meant to be injected into a human being ![]() |
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#15 | |||
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Wise Elder
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Let us know how it all goes. Wishing you luck. |
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#16 | |||
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Junior Member
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Thanks so much ![]() if someone wants to chat pm me. |
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#17 | ||
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Senior Member (jccglutenfree)
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B12 deficiency does cause peripheral nerve damage as well degeneration of the spinal column. And when that degree of damage is done, it can take months to years to repair. You may improve more yet, given more time. You may have other co-existing disease, so good for extra testing to rule other things out, but don't underestimate the damage the B12 deficiency alone can do. Subacute combined degeneration: clinical, electrophysiological, and magnetic resonance imaging findings JNNP Quote:
Good luck on all the follow up tests!
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#18 | |||
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Junior Member
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I had alot of those same symptoms when i was dx with ms but they did a spinal tap and an MRI to determin that i did have ms so just keep going to your doctor and maybe ask about an MRI. BC the spinal tap i had done was neg for ms but the MRI showed that i did have it. Just keep talking to your DR and i found doing research helps alot.
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#19 | |||
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Member
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hey metalmx.
are you any closer to an answer? had your mri's ? can I have my garden back too please. i think it blew in from SA to you today. |
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"Thanks for this!" says: | Twinkletoes (10-01-2009) |
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#20 | ||
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New Member
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I have been on helminth therapy for about 8 months or so - have had 3 doses so far - one more planed in a couple of months. I take it do lupus/sjogrens. I friend of mine with Hashimotos is considering it. Not sure if this was a confirmed diagnosis for you, but seemed to be indicated? Can you provide a further update about how it has gone for you in the longer term? The one year on update sounded very promising.
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