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Old 08-21-2009, 06:03 AM #1
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Default Are these MS Symptoms?

I am a 20 year old male. I have been having these symptoms for about a year, in march they suddenly got better/improved then they got worse again.

- Seeing flashing spots in front of eyes when blinking sometimes
- seeing floaters or what looks like worms in the vision running around at times
- chronic fatigue/ feeling of generalised weakness
- sometimes air hunger/feeling breathless for no reason
- poor appetite
- muscle weakness
- reduction in the sense of touch
- tingling/pins and needles all over the arms, legs, head, and other parts of the body
- poor short term memory/difficulty remembering
- cold hands
- heart rate feels like its sometimes alternating fast with slow
- pulsing sensation in the neck and in the stomach
- hard to exercise/tolerance to exercise diminishing where as before i was able to exercise easily.
- mood alternating with good to suddenly feel suicidal
- sometimes feeling like i cannot speak (although this has been not very frequent)
- bowel movements all over the place


I have hashimoto's thyroiditis and am being treated with armour thyroid.

Am wondering if these symptoms are consistent with MS?

Im about to do EMG and nerve conduction studies with my neurologist also. My regular blood work has also always been generally normal.

I did a CT scan of the brain which showed posterior cortical atrophy abnormal for a patient of my age. Rest of the brain appeared normal.

I also have a moderate thoracic kyphosis. I sometimes when i lie on my back get numbness in a leg and a whole leg can go numb and feel very weird tingly for a minute and then it goes away. I was getting a massage the other day and when the masseur was massaging along my spine they pressed a bit harder with their elbow and i had really bad tingling down both my arms and legs, after i felt a bit disorientated/weird.

Also i have low IGF-1 levels 19 (24 - 102) nmol/L

It appears this itself (GH deficiency) can cause these symptoms... which GH could relieve.

So i am trying to figure out if this is being caused by MS or IGF-1 deficiency.

Last edited by MetalMX; 08-21-2009 at 06:24 AM.
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Old 08-21-2009, 07:08 AM #2
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Hello, MetalMX.

It's hard to say if your symptoms are MS, some could be others I would have to say no. There are just so many things that have similar symptoms as MS. Has your neuro mentioned MS?
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Old 08-21-2009, 07:31 AM #3
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Hi MMX,

You sound like you're going through the mill and for that, I am sorry.
I can't give an MS opinion. I don't know enough about it myself yet.

But reading your other posts are interesting (if too complex for my fried brain to follow).
Perhaps if you could put an idiots guide to supplements for ms and fatigue that you know about.... ??? sorry, it's all about me tonight.
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Old 08-21-2009, 08:06 AM #4
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Quote:
Originally Posted by pud's friend View Post
Hi MMX,

You sound like you're going through the mill and for that, I am sorry.
I can't give an MS opinion. I don't know enough about it myself yet.

But reading your other posts are interesting (if too complex for my fried brain to follow).
Perhaps if you could put an idiots guide to supplements for ms and fatigue that you know about.... ??? sorry, it's all about me tonight.



Thanks for the support, Yes symptoms suck, plain and simply. I just don't know if they are caused by MS yet or not.

I could certainly put up a thread related to supplements that can help with fatigue.

I could name a few: NADH (Active B3), Ubiquinol (Active Coenzyme Q10).

http://products.mercola.com/coq10-ubiquinol/

http://www.smart-drugs.net/ias-NADH.htm

These two would be the best ones since they work directly on the electron transport chain in the krebs cycle to facilitate mitochondrial functioning.

Another one would be Coenzymated B Complex. These are Coenzymated B vitamins in their active forms, they are also potent methyl donors.

http://vitanetonline.com/description...al-Peppermint/

Off the top of my head since MS is causes a destruction of the body's myelin sheath the coating on the nerves - Methylcobalamin would be another excellent supplement which directly builds/supports the nerves.

EFA's (essential fatty acids) are required by the body for lots of processes as well as nerve functioning and growth. Best source for these is Hemp seed oil, Udo's oil and extra virgin coconut oil.


I know people have cured their MS with helminthic therapy (which is purposeful infestation with a helminth "worm" in your intestinal tract which bonds with the host "you" and helps to alter immune responses and reverse auto-immunity). People with auto-immune conditions have had success with this. Chron's disease, ulcerative colitis and others.

If i was sure i had MS and diagnosed i would try helminthic therapy.
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Old 08-21-2009, 10:22 AM #5
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It is hard to tell and you would need follow up with your dr.

A lot of the symptoms you describe could be related to you thyroid condition. I would definitely ask the dr to run not only the standard TSH but get your T3 and T4 tested as well.

Secondly, have you had any X-rays or testing of any kind on your back? A herniated disc could cause the pain you experienced while getting a massage.

In the meantime, hang in there. For some the road to an MS diagnosis is long. Keep a health journal of both diet, symptoms, and things that trigger symptoms.

Let us know how you are doing and what the out come of your EMG show.
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Old 08-21-2009, 11:12 AM #6
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Go to NMSS.org and find tons of support, info and help.

I am so sorry you are going through so much. it sounds like alot to carry. There are more than 100 things that can mimic MS. Its a process of ruling things out. Blood work to check your B12 and Vitd. Lyme, Lupus, and infections. Then you need MRI to check for lesions in the proper places, and a spinal tap to check for remnants of mylin being eaten. its not a quick process, even for those with glaring symptoms, and big MS centers looking after them. You must have 2 clear periods or disease activity with at least a 2 month to 2 month break inbetween relapses for most to qualify. There are some that qualify without meeting that critera, but its rare. It really is a huge laundry list of things that can, and do mimic such events. I wish I could color code the world.

I want eyebrows to change color when we are sick. If you have heart disease, your eyebrow turns red. MS it turns orange. Lyme is green, and so on. Wouldnt that be great to go to the MD and say "hey! my eyebrow is orange, what does this mean?"

hang in there. Make sure you get a team on your side, and keep a journal. Keep track of what tests you have had done and what the results were. Going to an MS center can help. the NMSS.org has a list of ones close to you.

Till then, pull up a chair and hang out. We have folks in every stage of this awful disease. From limbo island, to PPMS. your in good company.
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Last edited by Dejibo; 08-22-2009 at 07:38 AM. Reason: lost my mind
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Old 08-22-2009, 03:52 AM #7
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Thanks for the support.

It has been tough.

Due to all this i have not been able to work or study.

My group of friends has diminished/disappeared because of these issues.

I have support mainly from family.

But it is good to talk to other with similar problems on a forum such as this.

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Old 08-22-2009, 07:44 AM #8
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Friends, and even some family disappearing is a common theme in any long term illness. From Cancer to MS. It seems folks can be sympathetic for a short period and even quite helpful, but after a few weeks, or months, many just want to get on with their busy lives, and we get further and further from their minds, their lives, and their to do list. The visits turn into phone calls to say "sorry, I was so busy, I didnt make it over there today" and we say "oh, thats ok, dont worry about it, I know you have things to do." and then, we go from an almost daily call to a once a week. Hang in there. your true friends will either rise to the challenge, or you will meet new friends who meet a new standard of what is acceptable behavior in a friend.

You have a group of instant friends here. We may not be face to face, but we walk the same path. Diagnosed or not, we walk the same path. It may help once your conditions calms, if it calms to get out to volunteer at places that would have folks that would be more understanding. Or attend some local MS support groups, or some local events. Making new friends can be so much fun.

Hang in there, and keep us updated.
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Old 08-22-2009, 08:09 PM #9
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Helminthic therapy????

well i learn something new every day. Just Wiki'd it. Holy cow !

Thanks for the links
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Old 08-23-2009, 11:16 PM #10
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tkrik is correct, IMO.
Thyroid and perhaps a herniated disc in the back.

Quote:
Originally Posted by MetalMX View Post
I am a 20 year old male. I have been having these symptoms for about a year, in march they suddenly got better/improved then they got worse again.

- Seeing flashing spots in front of eyes when blinking sometimes (see an eye doctor)
- seeing floaters or what looks like worms in the vision running around at times (vitreous or retinal detachment)
- chronic fatigue/ feeling of generalized weakness (Thyroid)
- sometimes air hunger/feeling breathless for no reason (Thyroid)
- poor appetite (Thyroid)
- muscle weakness (Thyroid)
- reduction in the sense of touch (I don't know)
- tingling/pins and needles all over the arms, legs, head, and other parts of the body (can be too high Thyroid meds)
- poor short term memory/difficulty remembering (Thyroid)
- cold hands (Thyroid)
- heart rate feels like its sometimes alternating fast with slow (Thyroid meds)
- pulsing sensation in the neck and in the stomach (Thyroid)
- hard to exercise/tolerance to exercise diminishing where as before i was able to exercise easily. (Thyroid)
- mood alternating with good to suddenly feel suicidal (Thyroid med)
- sometimes feeling like i cannot speak (although this has been not very frequent) ( I don't know)
- bowel movements all over the place (Thyroid)


I have hashimoto's thyroiditis and am being treated with armour thyroid.

Am wondering if these symptoms are consistent with MS?
Did you know that you can't take Coenzyme Q10 and many listed herbs while on Thyroid medication? I have a Hashimoto's Thyroid Dx also.

I used a blue color to identify some of my thoughts since I am Thyroid meds too. It is an auto-immune disease. Your body is attacking your Thyroid.

You should be seen by and Endocrinologist to check your Pituitary and Hypothalamus gland also. An Eye specialist and a Orthopedist for your back and numbness. Just my thoughts on your questions.

As for MS? You have to "wait and see" a while longer, or see a MS specialist for the correct tests.
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