I was recently in the hospital for 5 rounds of plasma pheresis. During the 4th treatment I experience EXTREME pain in my neck where they had the catheter for the procedure. They stopped the treatment, did an ultrasound and discovered a blood clot. They stopped all treatment and started me on blood thinners. I was discharged to home.

Every since then I have had extreme difficulty breathing. I get out of breath if I make my bed or walk from one room in my house to the other. Sometimes, I am literally gasping for air.

I saw my regular doctor last week and he sent me for an urgent CT scan to rule out additional blood clots or pulmonary embolism. The test came back fine and showed no further blood clots. BUT I STILL CAN'T BREATH!

I don't know what is wrong. I realize it could be the progression of my MG affecting my diaphramatic muscles or something else. Other than asking for oxygen at home what else should I do? This is limiting my life more than any other MG symptom and it is scary.