FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
|
Thread Tools | Display Modes |
08-24-2009, 08:35 PM | #1 | |||
|
||||
Junior Member
|
Hi all
I'm a newbie here. I was just recently diagnosed. It's been quite a journey as it probably has been with all of you. Anyway my family phys ran the blood test which was positive for MG. I was fortunate to find a great doc in Atlanta/Emory. She is a neurologist as well as a neuro muscular specialist. She has been wonderful. After she confirmed MG, on July 12th, she started me on Mestinon and I returned in 1 month. My appt was on August 18th. At that appt she also started me on CellCept. She explained that it was important that we treat this disease agressively..Basically she is treating me now with this approach to help me from suffering 20 years from now with possible disability. My MG mainly effects my arms, legs, face and back right now. Then she said that it was important for me to remove my thymus....(ct scan in July did not show thyoma). I am going on 9/1 to talk to a surgeon. I am really scared about this. I had been really ok because she is a really good doc, until I spoke with an elderly lady at my church who was diagnosed in 1969. (she had her surgery in the 70"s) She asked me what the doc said and I told her and she freaked....Basically telling me....oh no, you need to get another opinion...it's too soon....are you sure you want to do that......it's so bad of a surgery....it's terrible....maybe you need too find another doctor... Needless to say, i was a mess after that conversation. I guess my question is.....did many of you guys have your doc's suggest the surgery this soon? Did any of you doc's use the same approach?? Would you get another opinion? |
|||
Reply With Quote |
|
|
Similar Threads | ||||
Thread | Forum | |||
Thymus Gland removed...Can it grow back? | Myasthenia Gravis | |||
no enlarged thymus gland | Myasthenia Gravis | |||
Thymus any difference? | Myasthenia Gravis |