By muscle twitching, what exactly do you all mean? I twitch a lot as I am going to sleep. Just all of a sudden I will have a twitch -- could be just an arm or leg or my whole body -- which will then jerk me awake. Does that seem to fit with what you mean by twitches?

:cool:

No, its like someone is poking me lightly, big muscles like the top of my arm or leg or calf or hip. Little thumps or several little thumps. its like someone is poking me from the inside, LOL
It reminds me of when I was pregnant and I first felt little flutters in my stomach. I know, for those guys out there, that's not going to register, LOL
like someone is gently tapping you with their finger. Sometimes (like just now) my leg might move a little.

Hey, JF, do you have a more informal name? ;) Like Jello?

My aunt had polymyositis. She did indeed have ptosis because those muscles were also "attacked." MG doesn't cause pain so I guess your doctor is looking at polymyositis because of that. Inflammation does cause pain.

I should probably do a separate post on ptosis and double vision. If a person has ptosis/droopy eyelids, they DO have double vision (DV). I had DV my entire life but chalked it up to astigmatism. It wasn't until the neuro-ophthalmologist I saw in 2000 showed me that I did and why was I able to "see" it. I was so used to it, that I didn't even realize what it was.

I'll paste a photo from the AAFP article on all things eye related so you can see the muscle anatomy from the side. We have so many muscles in our faces.

When the muscles around the eye are weak, they change how the two eyes focus. That's how and why a person gets DV. The eyes focus differently. If you hold your head straight and move your index finger towards your eyes and back, you will more than likely see the DV. Some people see it in front, others to the side (don't move you head for that, just look to the side with your eyes). Then if you close one eye, the DV disappears.

I've had to take photos of my entire face to show the droopiness, in order to "prove" it to neurologists. Oh ye of little faith. It's quite dramatic to do that. My entire face droops, even my nose!!! Scary looking.

I hope you get answers soon.

Annie

OK, the nose droop thing, this is gonna sound SO WIERD!!!
I have this freckle dead in the center of the tip of my nose! It has been there almost 50 years, smack dab in the middle! Kids always teased me about it... I even had it cut off and it grew back! It might be a mole but it was dead center!
Well in the last few pics I saw of myself, it has moved to one side!!!!!
Its not in the center any more!
I'm going to go read about that eye thingy :)
Thanks!
I guess my most informal name is Cathy, its shorter than jellyfish but I kinda like Jello, it resembles me as well! LOL

I took pics of my droopy eye and my Neoro looked at it but she said, I believe you... I made her look to see if it was that bad. I was looking through some old photos from about 6 months ago to post on here and one of them has that same droopy eye! Its always the same eye and it has happened in photos a lot in the past! I usually delete them, I look kind of stoned, LOL
I just thought it was what happens in a photo if someone is about to blink, but these cameras didn't have a flash, so its just my weird eye, I guess.
It been like that for years, I just deleted the droopy pics for years! LOL