I have been trying to get a diagnosis for 6 months. 3 Neuros later, still nothing. MRIs and vision evoked tests seemed to rule out MS plus I don't have sensory issues. I get tired after using muscles. Can't sit up in a restaurant without leaning all over the table. LOL
My head flops to one side after sitting at church. Large muscles are weak and so is my tongue. So MG was mentioned by my last neuro who is passing me to a more experienced neuro. I have asked them if muscle twitches (in large muscles of arm, legs or back) occurs in MG?
They say the meds can make it happen but I'm not on meds. So I wonder if anyone had jumping muscles before they were on meds?
No pain or cramping, just several large muscle twitches?
I have less twitching after taking CoQ10 but it might be unrelated.
I am worried about an ALS diagnosis but I am better after rest which seems like more of an MG thing but the muscle twitches worry me since they are common in ALS.