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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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08-26-2009, 04:26 PM | #1 | ||
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Erin, your symptoms sound like mine from this post. I am fairly new and have not corresponded with you previously. Since I can't see your post at this time, I can't remember exactly what you called it, but what IS an IV IG? What is the nature of your treated condition? I really appreciate the information. I would have sent this by PM, but my connector is malfunctioning. Thank You. And I AM praying for you! billie
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08-26-2009, 04:52 PM | #2 | |||
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Hi Billie! How are you today? I have Myasthenia Gravis - a disease that causes terrible fatigue.
IV IG is a drug that is given to maintain my immune system - in my case help suppress it - via IV as my veins are SHOT due to all the meds I take. If you are interested, my entire story regarding MG is @ www.mgsouthtexas.org - it is long, but explains everything in detail! THank you for the prayers! They mean so much to me! Bg hugs! Erin Quote:
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08-26-2009, 06:13 PM | #3 | |||
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Erin,
I am so sorry to hear you are feeling so bad. I'm glad you're going in next week for your treatment so you can enjoy your trip to see your neice. I do believe in the power of prayer and will definitely be praying for you. Kendra |
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08-26-2009, 06:22 PM | #4 | |||
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Sorry you are having a down time Erin. I will remember you in prayer.
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08-26-2009, 07:08 PM | #5 | ||
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I will keep you in my prayers Erin. I hope the IVIG gives you that extra boost that you need so you can enjoy your niece.
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08-26-2009, 09:19 PM | #6 | |||
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Erin,
As always, you have got my prayers, my friend! Take care and keep in touch. Huge Hugs to You, Simon |
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08-26-2009, 10:44 PM | #7 | ||
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I'm so sorry you're felling weak and exhausted. I will say a prayer for you and I hope you feel better soon.
Enjoy your Lillie! That is if I don't talk to you before then. Have a good night. Kristie |
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08-27-2009, 01:19 AM | #8 | |||
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Senior Member
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Hey hon! Looks like we'll both be getting our "Go-go" juice @ the same time!
Here's hoping it works! Big hugs and prayers to you! Love, Erin
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08-27-2009, 01:17 AM | #9 | |||
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THank you honey! Are you feeling better? I'm worried about you..........
Don't worry - my IV IG hasn't let me down yet! Love, Erin
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08-27-2009, 01:09 AM | #10 | |||
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Thank you so much! How are YOU feeling? Are YOU OK?
I'm actually excited about the IV IG - it always helps so much! That way I'll be in "peak" position to spoil my little princess! We are going to have sooooo much fun and it will be so nice and cool there! love, Erin
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