[Nicknerd]

Hey guys,

I'm begining to get pretty worried about the state of my MG...Every morning, I wake up and am unable to move my tongue to the right or left to touch my back teeth. My speech is very slurred and getting harder and harder to understand. I take my prednisone (60 mgs) and my 180 mgs of mestinon SR as soon as I wake up...There's a touch of improvement within an hour...Then I take 60 mgs of Mestinon two hours after the first meds...Sometimes there's improvement right away (within an hour), and other times, there's not...I know that when it's hot, things are much, much worse...Today, it was cool and I had a full day of being able to speak quite clearly, which is odd compared to the last couple of weeks...I also have a very odd chest infection where I have no fever but have a lot of congestion in my lungs...When I cough, it sounds like the worse cold ever...I get really exhausted after coughing for a bit and sorta feel like I'm drowing, there's so much phlegm (sorry to be so graphic)...I'm taking amoxicillin for it, even though the doc. says that it's a virus, but to be safe, he prescribed the antibiotic. I'm also having a lot of ear fullness/crackling/whooshing sensations...When I talk, or attempt to, it feels like the ears are full and this affects my speech too...

Anyway, when my tongue is very weak, I can see these longitudinal lines going down the tongue. The tongue is pale looking and can't be bent unto itself.

Does anyone else's MG affect the tongue this badly? I'm worried that my tongue may have some atrophy due to the MG or maybe even something else...I don't know why the prednisone isn't working, almost seems like it's increasing my weakness...My arms are a lot weaker now...It's hard for me to brush my hair and basically hold my arms up at a 90 degree angle...I also experience cold hands when holding my arms up and pins-and-needles...

I know that these symptoms are common for MG (not the sensory ones), but I'm just wondering why after more than 3-weeks of taking prednisone, there's no improvement....It makes me worried that maybe I was misdiagnosed and/or I've got some other disease going on...The tongue paralysis in the morning is the strangest symptom of all...I can't seem to find anything like that under MG on the net or in other people's experiences...

Thanks for your time, guys!
Nicky