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Exhausted.....just exhausted!

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Old 08-26-2009, 04:11 PM #1
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Thumbs down Exhausted.....just exhausted!
Hello all! Sorry I haven't been on much but I have been so flippin tired! I have been sleeping 14-16 hours daily and wake up tired, plus my arms and legs have been really weak.

I spoke to Dr. I today and we have IV IG set up for next week, as I am planning on heading to upstate NY on the 9th to see my precious niece! YAY!

I am soooo ready for my IV IG! It makes me feel so great!

I start Monday of next week and plan on coming home every night - especially since I'm going to be away from Mike and Devon the following week, but think I really need this right now!

For those of you who do pray, please do so! I really need to feel better in order to see Lilli....

Love,
Erin
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Old 08-26-2009, 04:26 PM #2
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Erin, your symptoms sound like mine from this post. I am fairly new and have not corresponded with you previously. Since I can't see your post at this time, I can't remember exactly what you called it, but what IS an IV IG? What is the nature of your treated condition? I really appreciate the information. I would have sent this by PM, but my connector is malfunctioning. Thank You. And I AM praying for you! billie
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Old 08-26-2009, 04:52 PM #3
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Heart HI Billie!
Hi Billie! How are you today? I have Myasthenia Gravis - a disease that causes terrible fatigue.

IV IG is a drug that is given to maintain my immune system - in my case help suppress it - via IV as my veins are SHOT due to all the meds I take.

If you are interested, my entire story regarding MG is @ www.mgsouthtexas.org - it is long, but explains everything in detail!

THank you for the prayers! They mean so much to me!

Bg hugs!
Erin










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Erin, your symptoms sound like mine from this post. I am fairly new and have not corresponded with you previously. Since I can't see your post at this time, I can't remember exactly what you called it, but what IS an IV IG? What is the nature of your treated condition? I really appreciate the information. I would have sent this by PM, but my connector is malfunctioning. Thank You. And I AM praying for you! billie
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Old 08-26-2009, 06:13 PM #4
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Default exhausted.....just exhausted!
Erin,
I am so sorry to hear you are feeling so bad. I'm glad you're going in next week for your treatment so you can enjoy your trip to see your neice. I do believe in the power of prayer and will definitely be praying for you.
Kendra
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Old 08-26-2009, 06:22 PM #5
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Sorry you are having a down time Erin. I will remember you in prayer.
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Old 08-26-2009, 07:08 PM #6
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I will keep you in my prayers Erin. I hope the IVIG gives you that extra boost that you need so you can enjoy your niece.
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Old 08-27-2009, 01:09 AM #7
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Teeth Hi JCPA!
Thank you so much! How are YOU feeling? Are YOU OK?

I'm actually excited about the IV IG - it always helps so much! That way I'll be in "peak" position to spoil my little princess!

We are going to have sooooo much fun and it will be so nice and cool there!

love,
Erin




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Sorry you are having a down time Erin. I will remember you in prayer.
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Old 08-27-2009, 01:15 AM #8
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Teeth Hi JCPA!
Thank you so much! How are YOU feeling? Are YOU OK?

I'm actually excited about the IV IG - it always helps so much! That way I'll be in "peak" position to spoil my little princess!

We are going to have sooooo much fun and it will be so nice and cool there!

love,
Erin




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Sorry you are having a down time Erin. I will remember you in prayer.
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Old 08-27-2009, 01:06 AM #9
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Teeth Hi Kendra!
Thank you so much!
I really appreciate the prayer!

I am sooooo excited to see Lilli! We have been speaking every day, but it just isn't the same! I am going to spoil that little girl rotten!

Love,
Erin





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Erin,
I am so sorry to hear you are feeling so bad. I'm glad you're going in next week for your treatment so you can enjoy your trip to see your neice. I do believe in the power of prayer and will definitely be praying for you.
Kendra
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Old 08-27-2009, 12:17 AM #10
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Hey Erin!

Big 'DITTO' to all of the other responses. I hope it will be much cooler for your New York visit. It is usually lovely there that time of year.

Sue
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