Home Menu

Site Navigation



Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
NeuroTalk Support Groups > > >

Exhausted.....just exhausted!

Reply
Page 1 of 3 1 23
 
Thread Tools Display Modes
Old 08-26-2009, 04:11 PM #1
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
  
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Thumbs down Exhausted.....just exhausted!
Hello all! Sorry I haven't been on much but I have been so flippin tired! I have been sleeping 14-16 hours daily and wake up tired, plus my arms and legs have been really weak.

I spoke to Dr. I today and we have IV IG set up for next week, as I am planning on heading to upstate NY on the 9th to see my precious niece! YAY!

I am soooo ready for my IV IG! It makes me feel so great!

I start Monday of next week and plan on coming home every night - especially since I'm going to be away from Mike and Devon the following week, but think I really need this right now!

For those of you who do pray, please do so! I really need to feel better in order to see Lilli....

Love,
Erin
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote

advertisement
Old 08-26-2009, 04:26 PM #2
billie billie is offline
Member
  
Join Date: Jul 2009
Location: Big Spring, TX
Posts: 246
10 yr Member
billie billie is offline
Member
 
Join Date: Jul 2009
Location: Big Spring, TX
Posts: 246
10 yr Member
Smile What is it
Erin, your symptoms sound like mine from this post. I am fairly new and have not corresponded with you previously. Since I can't see your post at this time, I can't remember exactly what you called it, but what IS an IV IG? What is the nature of your treated condition? I really appreciate the information. I would have sent this by PM, but my connector is malfunctioning. Thank You. And I AM praying for you! billie
billie is offline   Reply With QuoteReply With Quote
Old 08-26-2009, 04:52 PM #3
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
  
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Heart HI Billie!
Hi Billie! How are you today? I have Myasthenia Gravis - a disease that causes terrible fatigue.

IV IG is a drug that is given to maintain my immune system - in my case help suppress it - via IV as my veins are SHOT due to all the meds I take.

If you are interested, my entire story regarding MG is @ www.mgsouthtexas.org - it is long, but explains everything in detail!

THank you for the prayers! They mean so much to me!

Bg hugs!
Erin










Quote:
Originally Posted by billie View Post
Erin, your symptoms sound like mine from this post. I am fairly new and have not corresponded with you previously. Since I can't see your post at this time, I can't remember exactly what you called it, but what IS an IV IG? What is the nature of your treated condition? I really appreciate the information. I would have sent this by PM, but my connector is malfunctioning. Thank You. And I AM praying for you! billie
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Old 08-26-2009, 06:13 PM #4
dog lover's Avatar
dog lover dog lover is offline
Member
  
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
dog lover dog lover is offline
Member
dog lover's Avatar
 
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
Default exhausted.....just exhausted!
Erin,
I am so sorry to hear you are feeling so bad. I'm glad you're going in next week for your treatment so you can enjoy your trip to see your neice. I do believe in the power of prayer and will definitely be praying for you.
Kendra
dog lover is offline   Reply With QuoteReply With Quote
Old 08-26-2009, 06:22 PM #5
JCPA's Avatar
JCPA JCPA is offline
Junior Member
  
Join Date: Aug 2009
Location: South Ga Girl
Posts: 85
10 yr Member
JCPA JCPA is offline
Junior Member
JCPA's Avatar
 
Join Date: Aug 2009
Location: South Ga Girl
Posts: 85
10 yr Member
Default
Sorry you are having a down time Erin. I will remember you in prayer.
JCPA is offline   Reply With QuoteReply With Quote
Old 08-26-2009, 07:08 PM #6
Shari_W Shari_W is offline
Member
  
Join Date: Aug 2009
Posts: 241
10 yr Member
Shari_W Shari_W is offline
Member
 
Join Date: Aug 2009
Posts: 241
10 yr Member
Default
I will keep you in my prayers Erin. I hope the IVIG gives you that extra boost that you need so you can enjoy your niece.
Shari_W is offline   Reply With QuoteReply With Quote
Old 08-26-2009, 09:19 PM #7
TxSimon's Avatar
TxSimon TxSimon is offline
Member
  
Join Date: May 2009
Location: Texas
Posts: 121
10 yr Member
TxSimon TxSimon is offline
Member
TxSimon's Avatar
 
Join Date: May 2009
Location: Texas
Posts: 121
10 yr Member
Default
Erin,
As always, you have got my prayers, my friend! Take care and keep in touch.
Huge Hugs to You,
Simon
TxSimon is offline   Reply With QuoteReply With Quote
Old 08-26-2009, 10:44 PM #8
nemsmom nemsmom is offline
Member
  
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
nemsmom nemsmom is offline
Member
 
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
Default oh sweety
I'm so sorry you're felling weak and exhausted. I will say a prayer for you and I hope you feel better soon.

Enjoy your Lillie! That is if I don't talk to you before then.

Have a good night.

Kristie
nemsmom is offline   Reply With QuoteReply With Quote
Old 08-26-2009, 10:59 PM #9
Nicknerd's Avatar
Nicknerd Nicknerd is offline
Member
  
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
10 yr Member
Nicknerd Nicknerd is offline
Member
Nicknerd's Avatar
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
10 yr Member
Default Hey Erin
I hope that the IViG gives you the strength that you so need at this time, and I hope that your trip to see your niece goes awesome! Good luck with everything and I WILL pray for you!

Btw, I clicked on the link that put up for Billie....Your story is so moving, Erin! I mean I knew pieces of it from your posts here on the site, but had never actually read it in chronological order...What were those spots that they had discovered on your lungs?

Nicky
Nicknerd is offline   Reply With QuoteReply With Quote
Old 08-26-2009, 11:35 PM #10
AnnieB3 AnnieB3 is offline
Grand Magnate
  
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default
Erin, I hope you will feel 100% better after IVIG and will have a fun and safe trip.

Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
Reply
Page 1 of 3 1 23

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
i am so exhausted mymorgy Bipolar Disorder 46 11-15-2008 04:53 PM
Hello All..I'm Exhausted Indea88 Thoracic Outlet Syndrome 4 05-26-2008 02:11 AM
So exhausted.................... Nikko Bipolar Disorder 4 03-27-2008 03:22 PM
Very exhausted of this: scenicworlds Bipolar Disorder 4 01-22-2008 10:51 PM
Exhausted befuddled2 Bipolar Disorder 8 08-20-2007 01:14 PM


All times are GMT -5. The time now is 04:20 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home