Home Menu

Site Navigation



Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

NeuroTalk Support Groups > > >

Starting IV IG 2morrow!

Reply
 
Thread Tools Display Modes
Old 08-30-2009, 09:41 PM #1
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
  
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Heart Starting IV IG 2morrow!
Hi guys! I start my go go juice 2morrow! Talk about relieved! I am so ready to be able to DO stuff again!

It should only be outpatient, that is as long as Dr. I approves and you never know. I am really glad to be heading in, b/c I've been getting my terrible headaches again, followed by wicked nose bleeds and bruising a lot lately .At least with the PICC line my blood is checked DAILY, so I will FEEL safer!

Does anyone else have the headache/nosebleed thing going on? I know it must be med related, but it's still weird!

I hope to get Jerry, cuz' he can place a line in under 5 minutes! 5 minutes! Can you imagine? I am (of course) a very hard stick, but i is so worth it to feel normal again!

i'll have my computer with me @ the hospital.......

Love,
Erin
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Old 08-31-2009, 01:41 AM #2
rach73 rach73 is offline
Member
  
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
Default Hi Erin
Good luck with the IV IG. Hope it works its magic.

Love
Rach
rach73 is offline   Reply With QuoteReply With Quote
Old 08-31-2009, 10:02 AM #3
Joanmarie63 Joanmarie63 is offline
Member
  
Join Date: Mar 2009
Location: Western North Carolina
Posts: 468
15 yr Member
Joanmarie63 Joanmarie63 is offline
Member
 
Join Date: Mar 2009
Location: Western North Carolina
Posts: 468
15 yr Member
Default
Erin,

Good luck and I hope the go-go juice gives you the get up and go you need. I will be thinking of you. Have you had the port installed or are you getting one? As you know I had mine put in a couple of weeks ago but my body is not liking it. Went to surgen today and he couldn't believe how sensitive my system is to things. He has to go back in and try to fix it or he will remove it all together. As he said, people with autoimmune illness just don't follow the rules..LOL.
Joanmarie63 is offline   Reply With QuoteReply With Quote
Old 08-31-2009, 10:02 AM #4
nemsmom nemsmom is offline
Member
  
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
nemsmom nemsmom is offline
Member
 
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
Default Yay!
I'm so happy you get your liquid gold starting today! I hope it works like it always does this time. I know you need it to.

I hope you have a good book to read. I know hospitals are boring. Have a great day.

Kristie
nemsmom is offline   Reply With QuoteReply With Quote
Old 08-31-2009, 10:23 AM #5
Pat 110 Pat 110 is offline
Member
  
Join Date: May 2009
Posts: 586
15 yr Member
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Default
Hi Erin,

Good Luck! I'm sure you will feel your usual self after you get it and have lots of energy. Take care.

Hugs,
Pat
Pat 110 is offline   Reply With QuoteReply With Quote
Old 08-31-2009, 11:09 AM #6
maryec's Avatar
maryec maryec is offline
Member
  
Join Date: Apr 2009
Location: Florida
Posts: 291
15 yr Member
maryec maryec is offline
Member
maryec's Avatar
 
Join Date: Apr 2009
Location: Florida
Posts: 291
15 yr Member
Default
Erin
So happy for you, hope everything goes smooth ! Sounds like you are having some side effects to your immune supressants, make sure you make everone aware of your new symptoms !
Take Care
__________________

Mary
.
maryec is offline   Reply With QuoteReply With Quote
Old 08-31-2009, 10:23 PM #7
Nicknerd's Avatar
Nicknerd Nicknerd is offline
Member
  
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
15 yr Member
Nicknerd Nicknerd is offline
Member
Nicknerd's Avatar
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
15 yr Member
Default
Hey Erin,

Good luck with the IViG....I hope that it awakens those receptors...I started plasmapheresis again today...We'll be having our treatments at the same time!

Nicky
Nicknerd is offline   Reply With QuoteReply With Quote
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Starting to really wonder Iffynah Reflex Sympathetic Dystrophy (RSD and CRPS) 5 03-17-2009 11:34 PM
Will be starting LDN; correct starting dose? 0357 Multiple Sclerosis 15 12-29-2008 02:43 PM
Ok, this is starting to get worrisome.... Erin524 The Stumble Inn 17 10-19-2008 08:51 AM
Starting to wonder... tovaxin_lab_rat Multiple Sclerosis 43 06-15-2007 08:47 PM
Starting Over vodpop Epilepsy 9 09-21-2006 07:31 PM


All times are GMT -5. The time now is 04:15 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home