FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
![]() |
#11 | ||
|
|||
Grand Magnate
|
I'm glad I could make you feel a little more relieved! Having a disease like this can be scary at first. Knowing what meds can make things worse really helps. And your eye docs need to know and understand this issue too, so be sure to tell them about it. My eye doc uses only one drop on my eyes.
Do you have a U-shaped pillow? I like the ones that have buckwheat hulls in them. They are great for resting the head/neck muscles. I have used it during driving or just sitting at the computer. It came in handy when I had to sleep in my chair during pneumonia. You don't know how weak muscles can get doing simple things until you have a disease like this. I can get the most horrific "tension" headaches from those muscles getting weak. Those muscles in the back of the head can give me the most "vice grip" feeling. A friend of mine lives down there in MO and the heat has been horrific this summer. Glad it cooled down a bit for you. Annie |
||
![]() |
![]() |
![]() |
#12 | |||
|
||||
Member
|
Annie,
No I don't have a U-shaped pillow but need to get one. You are the second person who has mentioned how much they help. Oh you are not kidding about the "vice grip" feeling. It is miserable! We have definitely caught a break here in Mo! It is almost chilly right now. Feels great after all the heat. I have always loved summer but the older I get the more ready I am for Fall! Thanks, Kendra |
|||
![]() |
![]() |
![]() |
#13 | |||
|
||||
Senior Member
|
Kendra - when can I visit? J/K!
I am so ready to get out of this heat! Talk about miserable! ![]() Talked to Lilli today - she calls between 10-20 times daily to make sure I am heading up there! It is going to be a blast! Have a GREAT monday! Love, Erin ![]() Quote:
__________________
Erin . |
|||
![]() |
![]() |
![]() |
#14 | |||
|
||||
Member
|
You can vist anytime! I can't remember the last time we had an Aug. that was so cool!
How sweet that Lillie keeps calling. She is ready for the TLC that only an Aunt can give. Have a great trip! Kendra |
|||
![]() |
![]() |
Reply |
|
|
![]() |
||||
Thread | Forum | |||
question about small fiber neuropathy diagnosis | Peripheral Neuropathy | |||
Diagnosis | Traumatic Brain Injury and Post Concussion Syndrome | |||
Diagnosis Parkinson's Disease: You Are Not Alone Video Diagnosis Parkinson's Diseas | Parkinson's Disease | |||
Fibromyalgia Syndrome: Presentation, Diagnosis, and Differential Diagnosis | Fibromyalgia and Chronic Fatigue |